Weirdd

SophieeBabessxo · 07-28-2009

Is it really how I am the only one in my family with HEDS?
Alll the girls on my mums side of the family have an illness but none of them are HEDS or HMS.

xxBrittany · 07-29-2009

It is possible. That DOES happen on rare occasions and no it's not weird. You are ABSOLUTELY normal.

SophieeBabessxo · 07-30-2009

Okay, thanks

Chiara · 07-31-2009

i think that i am too ^^
but actually it is not clear...my mum was hypermobile when she was young but she did never dislocate anything, so that...who knows.

SophieeBabessxo · 08-10-2009

My sister has carpel tunnel, is that linked? x

Chiara · 08-13-2009

my mum had too.

SophieeBabessxo · 08-13-2009

I think it is linked then
Cause there was someone in the same ward as my sister who had Carpel Tunnel Syndrome and her son or daughter had HMS which is what I have.

vim876 · 08-15-2009

Carpal tunnel syndrome can be linked to EDS. The carpal tunnel is a tunnel (thus the name) through the bones in your wrist. Nerves, blood supply, etc. go through the tunnel. If you hold your wrist at an awkward angle (almost impossible to avoid for many with EDS), or if you have an unusually small tunnel, the bone can push against the nerve serving your thumb, pointer, index, and half your ring finger, causing agonizing pain.

I thought for a long time that it was a blown-out-of-proportion yuppie disease. Then I got it. I got diagnosed because I went to the hospital with symptoms of a nasty hand infection: swelling, debilitating pain in those fingers that had begun in one fingertip and spread, etc. If I don't wear a wrist brace it will come back.

SophieeBabessxo · 08-15-2009

Thank you vin876

ReineDeLaSeine14 · 09-25-2009

I have carpal tunnel myself...both wrists. Oddly my mom just got the release done Wed which is a last resort thing (her hand went totally numb).