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~Social Discussion~ Have something to talk about that is not health related...this is the place to post! This is also the place to share good news and a place to vent after having a bad day!

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EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.

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Old 04-26-2009   #1
ReineDeLaSeine14
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Update

Hey everyone! I miss you all and think of you often.

I'm checking in...some people have been wondering what's been going on so I thought I'd write a little something here...

Things are going alright...things are making headway which is cool...but I have a horrible case of lazy that is having trouble being remedied.

School's kind of a mess. I'm behind in both my library classes because I tried to do makeup work and current work at the same time so I have a bunch of things started but nothing is finished. My prof agreed to give me an Incomplete if need be to keep me from getting too stressed out.

I started Opana as my new pain medication...I was having too many bad periods on the Percocet when it wore off...like I'd be alright...then really not. So I'm trying out Opana ER and it's a low level pain all the time which feels really weird to me as I'm used to the ups and downs...

My friends have been kidnapping me and taking me out which has been fun. I got all touristy around Yale so that's how they knew I'd been isolating way too much...it was pretty cool because a friend of mine visited from California and some others from upstate that I don't see often.

I was snoozing when my insurance company called...it was my social worker with my benefits counselor. Basically they're trying to get my insurance to pay for more of my services than they have been.

There is no room in the DBT program for me so I'll be going back to IOP...four days a week for four hours when school gets out.

I'm hoping to go to Texas at some point to see my sister...she's going to be getting a divorce (her husband left her) so I don't really want her to be alone...I want to be with my sister because she's having a very hard time.

Oh...I have to see a neurosurgeon...that is not cool...but I do see my new rheumatologist on Monday!

I'll add more later if i need to. Hope y'all are doing well

<3 Stephanie
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Old 05-04-2009   #2
xxBrittany
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Wow Steph. You have been a very busy gal.
I'm praying for your sister and totally understand that you feel you need to be there for her. I'd be the same way.

Good to hear your friends are keeping you busy and getting you out and what nots.

I'll also be praying for you to not be so stressed with all your school work. This sounds just like me.. I'm going through a similar situation which I will probably write about tomorrow!
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EDS Kids is a support group and community dedicated to helping young adults and children who suffer from chronic pain caused by illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS) is a debilitating genetic connective tissue disorder which causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
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