~Doctors Appointments~Feel free to share appointment updates in this section.
Welcome To EDS-Kids
EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
I am FINALLY changing my geneticist.
I am going to Dr. Francamano here in Maryland, and losing Dr. Howard Levy, THANK GOD.
I couldn't stand his horrible bed side manner, or his manners in general.
Therefore, I changed, and I think this is going to be a more positive mood changer for me.
I will let you know how it goes when I go to the appointment.
I am scheduled to meet with Dr. Francamano on October 13th, so after I meet with her, I will let you know how everything goes.
__________________ Brittany Lynn Stay Strong.
I am a site administrator and if you ever need anything please feel free to contact me.
"some of us are just trying to get through the day without falling apart."
A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
You're gonna love her. She never made me or my mom feel bad for any of the things that have gone wrong...I know Dr. Levy made nasty comments about your weight which were uncalled for and rude. Dr. F doesn't do that.
Let me know how it goes!
__________________
What I always wish I was doing ---> :
I'm one of the mods here...feel free to PM me anytime (or IM too)