EDSkids Forum
Register FAQ Members List Social Groups Calendar Search Today's Posts Mark Forums Read

Go Back   EDSkids Forum > EDS & Other Health Issues > ~Doctors Appointments~
Reload this Page suggestions please

~Doctors Appointments~ Feel free to share appointment updates in this section.

Welcome To EDS-Kids
EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.

Reply
 
Thread Tools
Old 09-01-2009   #1
Chiara
Devoted Member
 
Join Date: Jun 2008
Location: italy
Posts: 82
Send a message via MSN to Chiara
suggestions please
my medical team here in iatly quit working
and actually we do not know what to do now...
i was wondering, what is the biggest and best medical center in the world that treats EDS?
is it true that there is a good one in London?
which centre would you suggest me? kind of Ehlers Danlos clinic?
does it exist?
help me please...we're kinda desperate about this...
__________________
Chiara, 18
EDS III type (or type I, they wonder about it)

Just Smile. ....and Always Stay Positive! Just think that life could be your worst enemy or your best love, it's up to you. And also the worst ailment could have its positive side.

I am a Hippie!!!
Chiara is offline   Reply With Quote
Old 09-01-2009   #2
Katherine
Registered Users
 
Katherine's Avatar
 
Join Date: Jan 2008
Country: Katherine's Flag is: Great Britain
Posts: 200
My Mood:
Oh no! Do you know why? I often hear about Kings College Hospital in London and there was a suggestion that i might have to go one day. I also hear of a Professor Bird and i think he might be at Kings College Hospital London but I'm not sure...
__________________
- Katherine

22
Vascular EDS
Katherine is offline   Reply With Quote
Old 11-09-2009   #3
xxBrittany
*Amazing Administrator
 
xxBrittany's Avatar
 
Join Date: Jan 2008
Location: Maryland, USA.
Posts: 719
My Mood:
Send a message via AIM to xxBrittany Send a message via MSN to xxBrittany Send a message via Skype™ to xxBrittany
Oh No Chiara! I am so sorry to hear that, I would go with what Katherine said, and then I would try to check out Johns Hopkins Medical Center/ University here in Baltimore, MD .. USA.

Let us know what happens!
__________________
Brittany Lynn
Stay Strong.


I am a site administrator and if you ever need anything please feel free to contact me.

"some of us are just trying to get through the day without falling apart."

A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
xxBrittany is offline   Reply With Quote
Old 01-29-2010   #4
ReineDeLaSeine14
Moderator
 
ReineDeLaSeine14's Avatar
 
Join Date: Jan 2008
Posts: 381
Prof Bird or Grahme in England
Johns Hopkins in the US
__________________
What I always wish I was doing ---> :

I'm one of the mods here...feel free to PM me anytime (or IM too)
ReineDeLaSeine14 is offline   Reply With Quote
Old 06-18-2010   #5
xxBrittany
*Amazing Administrator
 
xxBrittany's Avatar
 
Join Date: Jan 2008
Location: Maryland, USA.
Posts: 719
My Mood:
Send a message via AIM to xxBrittany Send a message via MSN to xxBrittany Send a message via Skype™ to xxBrittany
Chiara-
Did you ever have any luck of getting another medical team?
__________________
Brittany Lynn
Stay Strong.


I am a site administrator and if you ever need anything please feel free to contact me.

"some of us are just trying to get through the day without falling apart."

A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
xxBrittany is offline   Reply With Quote
Reply

Tags
suggestions

« Previous Thread | Next Thread »

Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump


All times are GMT -5. The time now is 07:23 PM.

Powered by vBulletin® Version 3.8.1
Copyright ©2000 - 2010, Jelsoft Enterprises Ltd.
Forum SEO by Zoints
© EDS Kids 2008
EDS Kids is a support group and community dedicated to helping young adults and children who suffer from chronic pain caused by illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS) is a debilitating genetic connective tissue disorder which causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
vBulletin Skin by Fife Web Solutions for Free vBulletin Templates

Contact Us - EDSkids Home - Archive - Top