~Hobbies/Crafts~This is the place to come talk about any hobbies you may have and any crafts that you enjoy!
Welcome To EDS-Kids
EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
So since I have no life now that I'm pretty much a prisoner in my parents house I finished my random knitting project and I've started a very exciting new one. I'm making myself an afghan and its gonna be massive. It will easily allow me to wrap up and with at least one other person and have blanket to spare!!! Its gonna be really pretty too. Is gonna be lime green, bright pink and a bright purple. of course those are my 3 favorite colors.
I'm also working on sewing a special top for me to wear for the birthday party my sister is organizing for my big 21st birthday. Its a lime green tube top that is really form fitted and the fabric is just this amazing cotton that has eyelet holes that are in a design...(I'm describing this really badly) but I LOVE it. I think I'm gonna look hot when I go out in it and thats pretty much the goal. I wanna look really good when I go out for my birthday so that I can kinda prove that my illness isn't gonna bring me down all the time...I know its kinda silly, but its one of those things thats really important to me. I wanna look so good that people forget that I'm sick and don't have the energy to take a shower most days.
what is everyone else working on?
__________________ Staci Jo *21*
When the world says "Give Up"; Hope whispers "Try one More TIme."
Classical EDS, Fibromyalgia, Depression, Anxiety, DDD & Bulging disk at L4-L5
I'm a moderator here and if you wanna chat or have any questions I'm here.
Oh Staci! They both sound beautiful!!!! Share pictures when you can!!! My grandma is making me an afghan too!! I can't wait to get it!!!!
__________________ Gwendolyn
*21 years old*
EDS (Hypermobility and Classical), POTS, NCS, CFS, IBS, GERD, Fibromyalgia, a sliding hiatal hernia, Depression, Gastroparisis
I am beginning to learn that it is the sweet, simple things of life which are the real ones after all.
~Laura Ingalls Wilder
The best and most beautiful things in the world cannot be seen or even touched. They must be felt within the heart.
~Helen Keller
So since I have no life now that I'm pretty much a prisoner in my parents house I finished my random knitting project and I've started a very exciting new one. I'm making myself an afghan and its gonna be massive. It will easily allow me to wrap up and with at least one other person and have blanket to spare!!! Its gonna be really pretty too. Is gonna be lime green, bright pink and a bright purple. of course those are my 3 favorite colors.
I'm also working on sewing a special top for me to wear for the birthday party my sister is organizing for my big 21st birthday. Its a lime green tube top that is really form fitted and the fabric is just this amazing cotton that has eyelet holes that are in a design...(I'm describing this really badly) but I LOVE it. I think I'm gonna look hot when I go out in it and thats pretty much the goal. I wanna look really good when I go out for my birthday so that I can kinda prove that my illness isn't gonna bring me down all the time...I know its kinda silly, but its one of those things thats really important to me. I wanna look so good that people forget that I'm sick and don't have the energy to take a shower most days.
what is everyone else working on?
sadly l ran out of time and am working again T_T have to pay ?150 off for my monitor before l can work on upgrades to my system if l so feel like doing some.
I"m pretty pissed at my new project cause I have to start the freaking thing over again because some how there is a part that has pulled out and refuses to be worked back in!!!!! I have got like 6 inches of 200 stitch rows done....thats a LOT of FLIPPING WORK TO TEAR OUT AND START OVER!!!!!
But anyways...thats just my little rant about my knitting.
__________________ Staci Jo *21*
When the world says "Give Up"; Hope whispers "Try one More TIme."
Classical EDS, Fibromyalgia, Depression, Anxiety, DDD & Bulging disk at L4-L5
I'm a moderator here and if you wanna chat or have any questions I'm here.
I'm now starting my GCSE's.
But I'm starting to learn contact juggling
I do dancing as well, as a joint speclist said that it would help. I've been dancing for about 6 years now and I love it
I'm now starting my GCSE's.
But I'm starting to learn contact juggling
I do dancing as well, as a joint speclist said that it would help. I've been dancing for about 6 years now and I love it
i've been dancing for 5 years too, but had to stop due to pain.
I do juggle too! flower stick, kiwido and three balls are my favourite.
__________________
Chiara, 18
EDS III type (or type I, they wonder about it)
Just Smile. ....and Always Stay Positive! Just think that life could be your worst enemy or your best love, it's up to you. And also the worst ailment could have its positive side.