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~Suggestions for the EDSkids website~ Have a suggestion for the site??? Want to see a new forum topic started??? Let us know here!

Welcome To EDS-Kids
EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.

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Old 01-11-2008   #1
Johnna
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Some other physical issues linked to EDS...

Hey guuuys!

I noticed that a few other people here have CFS. Since a good amount of people with EDS have CFS, what do you think of making a section for CFS and possibly FMS?

Johnna
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Old 01-11-2008   #2
SunsetParadise19
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Quote:
Originally Posted by Johnna View Post
Hey guuuys!

I noticed that a few other people here have CFS. Since a good amount of people with EDS have CFS, what do you think of making a section for CFS and possibly FMS?

Johnna
I like it. I don't know why I never thought about it before!
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Gwendolyn
*21 years old*


EDS (Hypermobility and Classical), POTS, NCS, CFS, IBS, GERD, Fibromyalgia, a sliding hiatal hernia, Depression, Gastroparisis


I am beginning to learn that it is the sweet, simple things of life which are the real ones after all.
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The best and most beautiful things in the world cannot be seen or even touched. They must be felt within the heart.
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Old 01-11-2008   #3
ReineDeLaSeine14
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It's okay Gwen...EDS comes with so many weird things it's hard to keep track of it all...
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Old 01-11-2008   #4
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Yeah but I have CFS and FM...you'd think I would have thought about it haha. :p
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Gwendolyn
*21 years old*


EDS (Hypermobility and Classical), POTS, NCS, CFS, IBS, GERD, Fibromyalgia, a sliding hiatal hernia, Depression, Gastroparisis


I am beginning to learn that it is the sweet, simple things of life which are the real ones after all.
~Laura Ingalls Wilder


The best and most beautiful things in the world cannot be seen or even touched. They must be felt within the heart.
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Old 01-11-2008   #5
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at least someone thought of it
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Staci Jo
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When the world says "Give Up"; Hope whispers "Try one More TIme."

Classical EDS, Fibromyalgia, Depression, Anxiety, DDD & Bulging disk at L4-L5

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Old 01-11-2008   #6
xxBrittany
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Agreed
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Brittany Lynn
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Old 01-13-2008   #7
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I know it's a long shot, but does anyone here have ichthyosis or psoriosis? Several relatives (on the EDS side) and I have one or the other, and I was curious if there's any connection, or if we all just hit the genetic jackpot twice.
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Old 01-13-2008   #8
Johnna
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I don't have psoriosis, but my mom, who also has EDS, does.
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Old 01-14-2008   #9
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both my parents do i think...
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Old 01-15-2008   #10
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Quote:
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I like it. I don't know why I never thought about it before!
I agree. I never thought of it either. Good idea.
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EDS Kids is a support group and community dedicated to helping young adults and children who suffer from chronic pain caused by illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS) is a debilitating genetic connective tissue disorder which causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
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