EDSkids Forum
Register FAQ Members List Social Groups Calendar Search Today's Posts Mark Forums Read

Go Back   EDSkids Forum > EDSkids > ~Suggestions for the EDSkids website~
Reload this Page Some other physical issues linked to EDS...

~Suggestions for the EDSkids website~ Have a suggestion for the site??? Want to see a new forum topic started??? Let us know here!

Welcome To EDS-Kids
EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.

Reply
Page 1 of 2 1 2 >
 
Thread Tools
Old 01-11-2008   #1
Johnna
Administrator
 
Johnna's Avatar
 
Join Date: Jan 2008
Country: Johnna's Flag is: United States
Location: Michigan, USA
Posts: 112
Send a message via AIM to Johnna Send a message via MSN to Johnna Send a message via Yahoo to Johnna Send a message via Skype™ to Johnna
Some other physical issues linked to EDS...
Hey guuuys!

I noticed that a few other people here have CFS. Since a good amount of people with EDS have CFS, what do you think of making a section for CFS and possibly FMS?

Johnna
__________________
I'm an admin so please let me know if you need anything! =]

Johnna - 22- EDS III, FMS, CFS, Hashimoto's Thyroiditis, HPA Axis Dysfunction, POTS, Meniere's Disease, Clinical Depression. CURED of Adrenal Insufficiency! =]
I'm a ninja, zomg!
Johnna is offline   Reply With Quote Share on facebook
Old 01-11-2008   #2
SunsetParadise19
*Super Moderator
 
SunsetParadise19's Avatar
 
Join Date: Jan 2008
Location: PA
Posts: 364
Send a message via AIM to SunsetParadise19 Send a message via Skype™ to SunsetParadise19
Quote:
Originally Posted by Johnna View Post
Hey guuuys!

I noticed that a few other people here have CFS. Since a good amount of people with EDS have CFS, what do you think of making a section for CFS and possibly FMS?

Johnna
I like it. I don't know why I never thought about it before!
__________________
Gwendolyn
*21 years old*

EDS (Hypermobility and Classical), POTS, NCS, CFS, IBS, GERD, Fibromyalgia, a sliding hiatal hernia, Depression, Gastroparisis
I am beginning to learn that it is the sweet, simple things of life which are the real ones after all.
~Laura Ingalls Wilder

 The best and most beautiful things in the world cannot be seen or even touched. They must be felt within the heart.
~Helen Keller
SunsetParadise19 is offline   Reply With Quote
Old 01-11-2008   #3
ReineDeLaSeine14
Moderator
 
ReineDeLaSeine14's Avatar
 
Join Date: Jan 2008
Country: ReineDeLaSeine14's Flag is: United States
Location: Connecticut
Posts: 468
It's okay Gwen...EDS comes with so many weird things it's hard to keep track of it all...
__________________
What I always wish I was doing ---> :

I'm one of the mods here...feel free to PM me anytime (or IM too)
ReineDeLaSeine14 is offline   Reply With Quote
Old 01-11-2008   #4
SunsetParadise19
*Super Moderator
 
SunsetParadise19's Avatar
 
Join Date: Jan 2008
Location: PA
Posts: 364
Send a message via AIM to SunsetParadise19 Send a message via Skype™ to SunsetParadise19
Yeah but I have CFS and FM...you'd think I would have thought about it haha. :p
__________________
Gwendolyn
*21 years old*

EDS (Hypermobility and Classical), POTS, NCS, CFS, IBS, GERD, Fibromyalgia, a sliding hiatal hernia, Depression, Gastroparisis
I am beginning to learn that it is the sweet, simple things of life which are the real ones after all.
~Laura Ingalls Wilder

 The best and most beautiful things in the world cannot be seen or even touched. They must be felt within the heart.
~Helen Keller
SunsetParadise19 is offline   Reply With Quote
Old 01-11-2008   #5
stacekins
Moderator
 
stacekins's Avatar
 
Join Date: Jan 2008
Location: Michigan
Posts: 279
Send a message via AIM to stacekins Send a message via Yahoo to stacekins
at least someone thought of it
__________________
Staci Jo
*21*

 When the world says "Give Up"; Hope whispers "Try one More TIme."

Classical EDS, Fibromyalgia, Depression, Anxiety, DDD & Bulging disk at L4-L5

I'm a moderator here and if you wanna chat or have any questions I'm here.
stacekins is offline   Reply With Quote
Old 01-11-2008   #6
xxBrittany
*Amazing Administrator
 
xxBrittany's Avatar
 
Join Date: Jan 2008
Country: xxBrittany's Flag is: United States
Location: Maryland, USA.
Posts: 913
Send a message via AIM to xxBrittany Send a message via MSN to xxBrittany Send a message via Skype™ to xxBrittany
Agreed
__________________
Brittany Lynn
Stay Strong.


I am a site administrator and if you ever need anything please feel free to contact me.

"some of us are just trying to get through the day without falling apart."


A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
xxBrittany is offline   Reply With Quote
Old 01-13-2008   #7
RockBird
Guest
 
Posts: n/a
I know it's a long shot, but does anyone here have ichthyosis or psoriosis? Several relatives (on the EDS side) and I have one or the other, and I was curious if there's any connection, or if we all just hit the genetic jackpot twice.
  Reply With Quote
Old 01-13-2008   #8
Johnna
Administrator
 
Johnna's Avatar
 
Join Date: Jan 2008
Country: Johnna's Flag is: United States
Location: Michigan, USA
Posts: 112
Send a message via AIM to Johnna Send a message via MSN to Johnna Send a message via Yahoo to Johnna Send a message via Skype™ to Johnna
I don't have psoriosis, but my mom, who also has EDS, does.
__________________
I'm an admin so please let me know if you need anything! =]

Johnna - 22- EDS III, FMS, CFS, Hashimoto's Thyroiditis, HPA Axis Dysfunction, POTS, Meniere's Disease, Clinical Depression. CURED of Adrenal Insufficiency! =]
I'm a ninja, zomg!
Johnna is offline   Reply With Quote
Old 01-14-2008   #9
ReineDeLaSeine14
Moderator
 
ReineDeLaSeine14's Avatar
 
Join Date: Jan 2008
Country: ReineDeLaSeine14's Flag is: United States
Location: Connecticut
Posts: 468
both my parents do i think...
__________________
What I always wish I was doing ---> :

I'm one of the mods here...feel free to PM me anytime (or IM too)
ReineDeLaSeine14 is offline   Reply With Quote
Old 01-15-2008   #10
xxBrittany
*Amazing Administrator
 
xxBrittany's Avatar
 
Join Date: Jan 2008
Country: xxBrittany's Flag is: United States
Location: Maryland, USA.
Posts: 913
Send a message via AIM to xxBrittany Send a message via MSN to xxBrittany Send a message via Skype™ to xxBrittany
Quote:
Originally Posted by SunsetParadise19 View Post
I like it. I don't know why I never thought about it before!
I agree. I never thought of it either. Good idea.
xxBrittany is offline   Reply With Quote
Reply
Page 1 of 2 1 2 >

Tags
eds, issues, linked, physical

« Previous Thread | Next Thread »

Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump


All times are GMT -5. The time now is 02:12 PM.

Powered by vBulletin® Version 3.8.1
Copyright ©2000 - 2012, Jelsoft Enterprises Ltd.
Forum SEO by Zoints
© EDS Kids 2008
EDS Kids is a support group and community dedicated to helping young adults and children who suffer from chronic pain caused by illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS) is a debilitating genetic connective tissue disorder which causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
vBulletin Skin by Fife Web Solutions for Free vBulletin Templates

Contact Us - EDSkids Home - Archive - Top