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Reload this Page Sick of my doctor...

~Doctors Appointments~ Feel free to share appointment updates in this section.

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EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.

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Old 01-13-2012   #1
xxBrittany
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Sick of my doctor...
Right now, I am seeing Clair Francomono.. I don't know what to do anymore because I've called her office twice so far and still have not gotten a phone call back, and I stressed to them last time I am in so much pain and have no idea what to do and just want her help..

Right now, she is not helping.
She is a great doctor for the personable aspect...but when it comes to pain control.. yeah....

I'm reaching the end of my rope, and don't know what to do.
I can't live with this pain forever..

I have tried Pain Management but no one has ever heard of EDS and if they have, they don't really do much for treating it.. I'm just done.

Sorry for the rant.

Does anyone suggest any new doctors in or very close to MD? And not Howard Levy..I have already been to him too...
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Old 02-05-2012   #2
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Update...

Made an appointment in March for Doctor Levy.
I had a hard time with him because he hassled me about my weight but now that I lost a lot, and I am older I think I am ready to handle his blunt-ness.

I'll let y'all know how it goes!

Hope everyone is doing well!
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Brittany Lynn
Stay Strong.


I am a site administrator and if you ever need anything please feel free to contact me.

"some of us are just trying to get through the day without falling apart."


A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
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Old 03-31-2012   #3
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Update #2:

Went to Dr.Levy. He seemed pleased that I came back and we are going to try to get back on track to helping my anxiety levels come down and to try to control my pain. He was actually quite pleasant this visit, so hopefully things stay the same! *Fingers crossed!*
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Brittany Lynn
Stay Strong.


I am a site administrator and if you ever need anything please feel free to contact me.

"some of us are just trying to get through the day without falling apart."


A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
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EDS Kids is a support group and community dedicated to helping young adults and children who suffer from chronic pain caused by illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS) is a debilitating genetic connective tissue disorder which causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
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