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~Hypermobility EDS~ For everyone with HEDS. Come here to talk about your daily lives, medications, doctor appointments etc. relating to this type of EDS.

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EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.

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Old 11-09-2009   #31
xxBrittany
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Exactly. Well put V!
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Old 01-29-2010   #32
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LOL Nordstrom Rack was awesome...I went there when I saw Dr. Francomano
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Old 06-14-2010   #33
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I am in the process of filling out papers to make my geneticist Dr. Francomano because Dr. Levy is a complete jerk!
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Old 06-16-2010   #34
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haha envy isnt the word for it,
its coming up to my prom in a few weeks and everyone is talking about how beautifull there heels are and i cant wear any, all my life i have worn braces with anything that they would fit in which it really clumpy boots as i got older and people started noticing that i was wering these shoes in the middle of summer it really put me down so i started wearing shoes that were in fashion but deffo not heals but also as i got older my feet got worse and worse. this resulted in my achilles tendon tighten up to try and straighten out my foot but its just caused my bones to bash together,
and now its coming up to prom with me in a aircast and cruthes and still not knowing which shoe im going to wear to prom lol.
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Old 06-30-2010   #35
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aw! does anyone have big feet? i have womens size 11! i have a terrible time finding heels. however, even though i wore heels, i took them off as soon as the dancing started..hahaha. So I spent $60 on shoes that I wore for 5 minutes. Splendid. Atleast I was fashionable!

Dev- hope something works out for you hun! Wish there was something I could do!
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Old 07-01-2010   #36
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I'm a size 3 or 4 :/ lol
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Old 1 Week Ago   #37
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Wow, Sophie! That's a small foot!
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Old 1 Week Ago   #38
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i have size 10/11 feet i were afo's and are getting kafo's the only thing i can wear is black boot's , i will never be able to wear nice shoes , my leg are very bad and i have serve nerve damage in my left leg .
Are there and other shoes that afo's/kafo's could fit in i live in AUS .
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EDS Kids is a support group and community dedicated to helping young adults and children who suffer from chronic pain caused by illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS) is a debilitating genetic connective tissue disorder which causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
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