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~Welcome New Members!~ Are you a new member? Drop on by and tell us a little bit about yourself!

Welcome To EDS-Kids
EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.

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Old 01-29-2010   #1
ReineDeLaSeine14
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Old face, new intro
I saw some new people around since I've been here last so I thought I'd do an intro.

My name is Stephanie, I am almost 22 and I live in CT. I am currently a full-time college student who is studying to be a librarian! I want to work with people who have disabilities.

I like to knit and bead, and I collect handmade dolls from Asia that I love to play with. This link is to my photo portfolio where I post pics I take of my dolls and miniatures www.flickr.com/photos/reinedelaseine14.

I have a specific gene deletion that is still called Ehlers-Danlos Syndrome but it's a combo of Classical, Hypermobility, and Vascular. I have the dislocations, the skin problems and Dysautonomia but I also have many Vascular signs and a severe vision impairment.

I also have Asperger's Syndrome, which is a type of autism. It has its challenges but also many gifts

I have four dogs, two Basset Hounds and two Miniature Dachshunds...one of them is all mine! Here is my Porkchop!



I am one of the mods here...don't hesitiate to contact me!

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Old 02-09-2010   #2
xxBrittany
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Why hello stranger. Nice intro by the way! And I love your dolls. They are so cute!

And your dog! Is his/her name really porkchop? SOOO CUTE!

Hello again, spoons & hugs!
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Old 02-12-2010   #3
vampirefan
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I just wanted to say that I think your dog is soooo adorable!!! The face reminds me of my grandmothers dog.
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Old 02-12-2010   #4
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I have a basset hound too! He's tri-coloured
What colour are yours Steph?
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Old 03-12-2010   #5
ReineDeLaSeine14
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Both mine are tri-colored.

Porkchop is indeed his name He's a black and tan smooth Piebald and Oscar is my black and tan longhair.
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Old 04-24-2010   #6
xxBrittany
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Where did you get the idea for Porkchop's name?!

Haha, that's about as bad as me having a cow named, Hamburger. :P
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Old 04-25-2010   #7
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l know someone who named a lamb dinner :p, in essence that was the plan until his daughter got attached to it, they never did get to eat it but its well cared for now ^_^.
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Old 04-25-2010   #8
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Awhh. We have a guniea-pig called Lamb Chop. I'm yet to find out why lol.
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Old 06-14-2010   #9
xxBrittany
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Hahaha ! Dinner as a name for a lamb! That's hilarious.

And lamb chop for a guinea pig? Now that's one I've never heard before!
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Old 06-17-2010   #10
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My mum finds the oddest names for the guniea-pigs and rabbits
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EDS Kids is a support group and community dedicated to helping young adults and children who suffer from chronic pain caused by illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS) is a debilitating genetic connective tissue disorder which causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
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