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~Doctors Appointments~ Feel free to share appointment updates in this section.

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EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.

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Old 05-01-2008   #11
stacekins
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I found out today that I have to have some testing done, but its looking like surgery is going to be happening. I don't want it, but I'm past the point of being able to live like this anymore and if I wait much longer I won't be able to go back to school and That would make me SERIOUSLY loose it.
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Old 05-02-2008   #12
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What did Dr. Francomano say about this???
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Old 05-03-2008   #13
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she said to wait the six months that the surgeon originally said, but the surgeon isn't saying that anymore. And I can't wait 6 months cause that would put in at the start of my semester to be finally figuring things out and I need this to be figured out and fixed before I go back to school, otherwise I won't be able to go back. So I'm pretty much between a rock and a hard place at the moment.
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When the world says "Give Up"; Hope whispers "Try one More TIme."

Classical EDS, Fibromyalgia, Depression, Anxiety, DDD & Bulging disk at L4-L5

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Old 05-03-2008   #14
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My mom was out of work for six months after her fusion...she couldn't drive for three or so...and then there's the four months of PT she did (ah mother daughter bonding...)
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Old 05-03-2008   #15
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well I"m hoping that if I get a fusion done I'll be able to go back to school in August cause I'm hoping that I can get it done in June just after my sister's wedding. and I figure I can do the PT and all that jazz at school just as easily as I can do it at home. I'm just gonna have to get all the info and move on from there I guess. I have to get the tests done on my back before I go and see the doctor again, so I'm hoping I can get that taken care of very quickly.
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When the world says "Give Up"; Hope whispers "Try one More TIme."

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Old 05-07-2008   #16
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With post op pain and stuff Staci...you may be overtaxing yourself. Is there any way you can go part time????
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Old 05-07-2008   #17
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even if I don't have surgery I'll prolly be going part time in the fall. I'm just not back up to where I should be so that I could be successful going full time. I have the test scheduled for my back on May 19th and I'm still waiting to here about the psych evaluation that I have to get, but I'm thinking I will be able to see the surgeon before my sister's wedding, so hopefully I'll get the ball rolling on things pretty soon.
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Staci Jo
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When the world says "Give Up"; Hope whispers "Try one More TIme."

Classical EDS, Fibromyalgia, Depression, Anxiety, DDD & Bulging disk at L4-L5

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Old 06-25-2008   #18
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Hope all is going well!
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EDS Kids is a support group and community dedicated to helping young adults and children who suffer from chronic pain caused by illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS) is a debilitating genetic connective tissue disorder which causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
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