~Doctors Appointments~Feel free to share appointment updates in this section.
Welcome To EDS-Kids
EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
I found out today that I have to have some testing done, but its looking like surgery is going to be happening. I don't want it, but I'm past the point of being able to live like this anymore and if I wait much longer I won't be able to go back to school and That would make me SERIOUSLY loose it.
__________________ Staci Jo *21*
When the world says "Give Up"; Hope whispers "Try one More TIme."
Classical EDS, Fibromyalgia, Depression, Anxiety, DDD & Bulging disk at L4-L5
I'm a moderator here and if you wanna chat or have any questions I'm here.
she said to wait the six months that the surgeon originally said, but the surgeon isn't saying that anymore. And I can't wait 6 months cause that would put in at the start of my semester to be finally figuring things out and I need this to be figured out and fixed before I go back to school, otherwise I won't be able to go back. So I'm pretty much between a rock and a hard place at the moment.
__________________ Staci Jo *21*
When the world says "Give Up"; Hope whispers "Try one More TIme."
Classical EDS, Fibromyalgia, Depression, Anxiety, DDD & Bulging disk at L4-L5
I'm a moderator here and if you wanna chat or have any questions I'm here.
My mom was out of work for six months after her fusion...she couldn't drive for three or so...and then there's the four months of PT she did (ah mother daughter bonding...)
__________________
What I always wish I was doing ---> :
I'm one of the mods here...feel free to PM me anytime (or IM too)
well I"m hoping that if I get a fusion done I'll be able to go back to school in August cause I'm hoping that I can get it done in June just after my sister's wedding. and I figure I can do the PT and all that jazz at school just as easily as I can do it at home. I'm just gonna have to get all the info and move on from there I guess. I have to get the tests done on my back before I go and see the doctor again, so I'm hoping I can get that taken care of very quickly.
__________________ Staci Jo *21*
When the world says "Give Up"; Hope whispers "Try one More TIme."
Classical EDS, Fibromyalgia, Depression, Anxiety, DDD & Bulging disk at L4-L5
I'm a moderator here and if you wanna chat or have any questions I'm here.
even if I don't have surgery I'll prolly be going part time in the fall. I'm just not back up to where I should be so that I could be successful going full time. I have the test scheduled for my back on May 19th and I'm still waiting to here about the psych evaluation that I have to get, but I'm thinking I will be able to see the surgeon before my sister's wedding, so hopefully I'll get the ball rolling on things pretty soon.
__________________ Staci Jo *21*
When the world says "Give Up"; Hope whispers "Try one More TIme."
Classical EDS, Fibromyalgia, Depression, Anxiety, DDD & Bulging disk at L4-L5
I'm a moderator here and if you wanna chat or have any questions I'm here.