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~Miscellaneous~ Have an EDS question (or any other health question!) but can't decide where to put it??? You can place it here!

Welcome To EDS-Kids
EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.

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Old 01-05-2011   #31
ReineDeLaSeine14
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I found out that my xrays caught part of my cervical spine MOVING around...the vertebrae wiggle and i'm only straight w/my head tilted backward. Well I obviously can't walk around like that!
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Old 01-05-2011   #32
TinyBrooke
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Yea, my sister's weird. I'm surprised she's not on here... May have to remind her about it. Not like she has anything to do during the days she stays home from work.
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Old 06-13-2011   #33
xxBrittany
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Brooke, definitely tell your sister to come on here! Having friends knowing what your going through is very beneficial not only for coping but for stress and everything else!
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Old 08-18-2011   #34
SophieeBabessxo
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This forum has done wonders for me!
Because it is full of people who actually understand and don't just nod.
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Old 08-26-2011   #35
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(:
Agree with you 100%, on that Sophie! Sometimes, I cry myself to sleep because I know only one family with EDS in my state, and they have strictly the Classical type and don't understand the daily dislocations and the chronic pain that comes with it, and I then feel as if I am alone.. but then I come on here, and you all help me tremendously!

Brooke, have you mentioned anything about EDSkids to your sister?
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Old 08-28-2011   #36
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This forum is just such a great support system
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Old 09-21-2011   #37
xxBrittany
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Yes it is, without you guys, I swear I'd go crazy!
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"some of us are just trying to get through the day without falling apart."


A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
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Old 09-22-2011   #38
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Haha, totally agree
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Old 09-23-2011   #39
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Then I'd have EDS, among other disorders and be in an insane asylum!
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I am a site administrator and if you ever need anything please feel free to contact me.

"some of us are just trying to get through the day without falling apart."


A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
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Old 09-23-2011   #40
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Somehow I don't think you'd last there Brit :L
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EDS Kids is a support group and community dedicated to helping young adults and children who suffer from chronic pain caused by illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS) is a debilitating genetic connective tissue disorder which causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
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