~Social Discussion~Have something to talk about that is not health related...this is the place to post! This is also the place to share good news and a place to vent after having a bad day!
Welcome To EDS-Kids
EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
So I just returned from a trip to NYC with my drama group and the entire time, I was thinking, "What if one of the people from the EDS or EDSkids communities lives in New York, or is visiting at the same time?"
I'm from Tulsa, Oklahoma (no, I'm not a hick, and no, I do not live in a teepee or ride a horse to school, you can't imagine how many times I've been asked).
I've told you where I've from, now your turn
P.S.- I was hurting so bad this morning (today was the last day of our trip) that when we were at Ground Zero, I couldn't focus. I didn't feel any emotion. I know I should have, but it just wasn't there. It was just pain. I hate that I have no pain medication to prevent that or at least help when it does happen. BLEGH.
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EDS Hypermobility type
Raynaud's
Neurocardiogenic Syncope
Mitral Regurgitation
Hugs and lots of spoons!
I'm from Suffolk, In England. It doesn't help that I have a Welsh last name, but I'm part Irish. Don't even ask about all that, I have a stupidly big family tree
Don't even get me started on huge families. My mom has over 60 cousins. I'm part Native American, part German, and half Californian (my mom doesn't know where her family comes from).
I've always wanted to go to England. I don't even know why, it's just always been a dream of mine. Maybe I'm destined to meet my soulmate there . Dunno.
__________________
EDS Hypermobility type
Raynaud's
Neurocardiogenic Syncope
Mitral Regurgitation
Hugs and lots of spoons!
I'm from Suffolk, In England. It doesn't help that I have a Welsh last name, but I'm part Irish. Don't even ask about all that, I have a stupidly big family tree
lol for some reason lm thinking your last name is jones or davis.. dunno why there seem to be hundreds upon hundreds of them all bunched up or at least in Aberystwyth XD tho l dont live in wales any more lm back down the midlands.