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Welcome To EDS-Kids
EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.

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Old 09-14-2011   #1
AliceSpittles!xxx
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Hi there, I'm Alice. I am 13 years old and have Ehlers Danlos syndrome hypermobility type 3. I was diagnosed in London in February but previous to that I had been diagnosed with Hypermobility. Before that even, I was diagnosed with tendonitis. Due to the fact I have EDS I am in pain all the time and have had many different medications- paracetamol, ibroprofen, naproxen, co-codamol, tramadol and dihidrocodine. None of these have worked. So still I was just wondering if there is anyone else out there like me that I could talk to about these various problems I have.

Alice xxx
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Old 09-14-2011   #2
SophieeBabessxo
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Welcome Alice
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Ehlers-Danlos Syndrome Hypermobility
Caffeine intolerance

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Old 09-21-2011   #3
xxBrittany
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Welcome Alice. I am the co-founder and one of the administrators here at EDSkids! I am so glad you have joined us and sorry that you are in pain! If you need any help, have any questions or would just like to talk, please do not hesitate to get a hold of me!
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I am a site administrator and if you ever need anything please feel free to contact me.

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Old 10-14-2011   #4
Johnna
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Welcome to EDS Kids, Alice! Sorry it took me so long to respond.

I'm Johnna and I'm one of the admins here. =] I hope you'll fine this forum helpful!

I'm sorry to hear about your diagnosis, but we're glad to have you here!

I know what you mean about the medications. I've been on Ibuprofen, Tylenol/Paracetamol, Naproxen, Vicodin, Vicoprofen, Tramadol, Dilaudid, Morphine, Methedone, and possibly more that I can't remember. I'm currently on Suboxone, which is the best I've been on so far! It brings my pain down from a 10 to a 4, and doesn't make me high. Having such a large cocktail of medications can be confusing, so its nice to find one that finally works. Don't worry, you will find one that works for you too.

Please feel free to come to the forum with any questions or if you just wanna chat!

-Johnna
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I'm an admin so please let me know if you need anything! =]

Johnna - 22- EDS III, FMS, CFS, Hashimoto's Thyroiditis, HPA Axis Dysfunction, POTS, Meniere's Disease, Clinical Depression. CURED of Adrenal Insufficiency! =]
I'm a ninja, zomg!
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EDS Kids is a support group and community dedicated to helping young adults and children who suffer from chronic pain caused by illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS) is a debilitating genetic connective tissue disorder which causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
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