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~Welcome New Members!~ Are you a new member? Drop on by and tell us a little bit about yourself!

Welcome To EDS-Kids
EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.

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Old 02-12-2009   #1
flea04
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hi i'm new
hi i'm lauren, or paxton, or pax, whichever you prefer.

i know a few people here from bydls, that's how i found this, a link was posted on bydls.

i was diagnosed in... 2001? i think with hyper mobility syndrome.

was going my little "let's gross everyone out" thing in december 2008 at PT during the wheelchair clinic... got diagnosed with EDS III.

my most hyper mobile joints are my elbows. the ones i dislocate the most are my ankles.

i have very mild skin involvement. cuts dont heal very fast. i still have all three picc line scars even though the last one was over 3 months ago. the oldest one is over 8 months old and is still there. my scars from a surgery in 2004 are also still weird.

about me ummm...

i'm a buddhist, i play bass guitar, i collect things with lobsters on them, i also collect uglydolls. i love hockey and baseball. i'm a sociology major/technical theatre and lighting minor. i'm a real life ghost hunter, i've been on 4 investigations with my team. i love mangos and strawberries. i have a cat named monk. i have brown hair and pink bangs. i watch far too much law and order and oz. i want to be an orthotist after i graduate. i like bunnies. i'm irish italian french and native american. i ramble alot.
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Old 02-12-2009   #2
ReineDeLaSeine14
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Welcome!!!!

Orthodist is the perfect occupation for someone with EDS LOL.

Hope you enjoy yourself!
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Old 02-26-2009   #3
Chiara
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Hi! nice to meet you! My boyfriend plays bass too!! He asks: It's easy for you to play bass with EDS?

Have a nice day,
Chiara
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EDS III type (or type I, they wonder about it)

Just Smile. ....and Always Stay Positive! Just think that life could be your worst enemy or your best love, it's up to you. And also the worst ailment could have its positive side.

I am a Hippie!!!
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Old 02-27-2009   #4
xxBrittany
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Welcome!
Very glad you could join us.
I'm one of the co-owners here on EDSkids, and my name is Brittany so if you will be needing anything just let me know!
Also, bunnies!? I have two albino's.. they're such a trip!

We have a lot of the same interests. Can't wait to talk with you some more!
Hope you are doing well!
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Old 03-01-2009   #5
SunsetParadise19
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Welcome Lauren!
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Gwendolyn
*21 years old*

EDS (Hypermobility and Classical), POTS, NCS, CFS, IBS, GERD, Fibromyalgia, a sliding hiatal hernia, Depression, Gastroparisis
I am beginning to learn that it is the sweet, simple things of life which are the real ones after all.
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 The best and most beautiful things in the world cannot be seen or even touched. They must be felt within the heart.
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Old 03-02-2009   #6
Katherine
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Hey *waves*
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Vascular EDS
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Old 03-02-2009   #7
stacekins
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Hello!
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Staci Jo
*21*

 When the world says "Give Up"; Hope whispers "Try one More TIme."

Classical EDS, Fibromyalgia, Depression, Anxiety, DDD & Bulging disk at L4-L5

I'm a moderator here and if you wanna chat or have any questions I'm here.
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Old 03-03-2009   #8
Johnna
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Welcome to EDS Kids... I hope you enjoy it here! ^____^ I'm Johnna... feel free to PM me if you need anything.
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I'm an admin so please let me know if you need anything! =]

Johnna - 22- EDS III, FMS, CFS, Hashimoto's Thyroiditis, HPA Axis Dysfunction, POTS, Meniere's Disease, Clinical Depression. CURED of Adrenal Insufficiency! =]
I'm a ninja, zomg!
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Old 03-04-2009   #9
ReineDeLaSeine14
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The closest I ever got was Guitar Hero and I have to tape my fingers LOL or else I'll rock out and they'll come out!
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Old 04-20-2009   #10
xxBrittany
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Quote:
Originally Posted by ReineDeLaSeine14 View Post
The closest I ever got was Guitar Hero and I have to tape my fingers LOL or else I'll rock out and they'll come out!

Steph, I know it's horrible to laugh. But I can only see you now playing Guitar Hero. Atleast you found a way to prevent them for coming out or so I hope.
Sheesh. You just made my day.
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I am a site administrator and if you ever need anything please feel free to contact me.

"some of us are just trying to get through the day without falling apart."


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EDS Kids is a support group and community dedicated to helping young adults and children who suffer from chronic pain caused by illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS) is a debilitating genetic connective tissue disorder which causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
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