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~Welcome New Members!~ Are you a new member? Drop on by and tell us a little bit about yourself!

Welcome To EDS-Kids
EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.

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Old 04-25-2010   #1
Beth...x
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Hi
Hi, my names Bethan and im a 16 year old girl with EDS III. I have alot of problems with dislocating joints mainly knees and shoulders but my hips are just starting to worry me and the doctors.

I love horse riding and used to have my own horse but i had to sell him because of the amount of work that goes with owning a horse.

I would love to get toknow more people with EDS as im struggling to get my friends to understand that i cant go out every night and shopping every weekend,

Hugs and spoons to you all

Beth xx
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Old 04-25-2010   #2
SophieeBabessxo
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Hiiiii
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Ehlers-Danlos Syndrome Hypermobility
Caffeine intolerance

Feel free to chat!
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Old 04-29-2010   #3
Katherine
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Hey
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Vascular EDS
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Old 05-21-2010   #4
Johnna
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Welcome to EDS kids! =] PM me or another mod or admin if you have any questions!

-Johnna
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I'm an admin so please let me know if you need anything! =]

Johnna - 22- EDS III, FMS, CFS, Hashimoto's Thyroiditis, HPA Axis Dysfunction, POTS, Meniere's Disease, Clinical Depression. CURED of Adrenal Insufficiency! =]
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Old 05-25-2010   #5
Beth...x
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Thanks Johnna
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Old 06-14-2010   #6
xxBrittany
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Hello Bethan!

Nice to meet you. I am the administrator here at EDSkids, and I wanted to personally welcome you!

I have EDS types 1 & 3, and I ride horses as well. My parents own two farms! But due to my health recently I haven't been able to ride as much..

I am glad that you came and joined EDSkids, and can't wait to talk to you more!

PS- If you ever need ANYTHING please don't hesitate to ask me! That's what I am here for!

Have a wonderful & safe day!

-Brittany (EDSkids Administrator)
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Brittany Lynn
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I am a site administrator and if you ever need anything please feel free to contact me.

"some of us are just trying to get through the day without falling apart."


A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
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Old 06-23-2010   #7
Beth...x
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Hey Brittany nice to meet you.
Thank you, everyones so nice on here
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Old 06-30-2010   #8
xxBrittany
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We try to keep it that way! Everyone here is like a big understanding family. I love it, and I hope you will too!
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Brittany Lynn
Stay Strong.


I am a site administrator and if you ever need anything please feel free to contact me.

"some of us are just trying to get through the day without falling apart."


A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
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Old 09-11-2010   #9
ReineDeLaSeine14
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Welcome to EDSKids! I'm a bit late on the scene but please don't hesitate to ask for help...I'm 22 and am a big animal lover too
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Old 10-20-2010   #10
xxBrittany
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Sheesh. Way to be late, Steph! Haha, just kidding.

Who doesn't love animals?
Well, I guess I could name a few...

This is totally off topic, but I saw this horrible video recently on the news. They were trying to identify this teenage girl, who uploaded a video onto youtube, of her throwing LIVE puppies into a freezing cold river, and you could hear the puppies crying. WORST THING I HAVE SEEN WITH MY OWN EYES!
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Brittany Lynn
Stay Strong.


I am a site administrator and if you ever need anything please feel free to contact me.

"some of us are just trying to get through the day without falling apart."


A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
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EDS Kids is a support group and community dedicated to helping young adults and children who suffer from chronic pain caused by illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS) is a debilitating genetic connective tissue disorder which causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
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