hi

[edsbec95]

hi my name is rebecca and i am from australia , i was just dx with eds type 3 this year , i'm still waiting to see gentic's though , i am very hypermobliy , i score 8 out 9 on the brighon score and i can hyper exstand my knees by more than 30 degress and i am very loss , i have a min of 80 sublaxtion's a day and a min of 40 disloction's in my body a day , i found i had eds after i sliped in my kitchen making christmas choclate , two day's before xmas and i broke my leg , snaped a ligment in my knee and did nerve damage , i just had surgry to see if the nerve can be fix and it was so damage that after 15 cm the doctor said if he went any further he could do more damage so he just sewed me back up . i wear AFO'S and i am getting KAFO'S soon , i live in constant pain and i also have to use a walker and wheel chair to get around , my surgent's say i will not get any better , which i know as i has been getting worse all my life . i was born at 27 weeks and i am a IVF baby , i'm one of two surving triplet , and i'm 15 , also have autism too. my eds doctor out here think's you can cure eds but what i have read up is that you can't and she thinks exercicse will cure me , but even though i am over weight , (pcos ) i have been doing the exercise all my life , so i know i will not get better my sister has it too ( more affected by the skin ) and my mum dose too ( just like me but dose not use a wheel chair or walker , sometimes a cane ) and i get very tied a lot , i just want to get to know people with it . thanks bec , i make jewelery and do beading a lot very carfty and i am a big MCFLY and JONAS BROTHER fan .

[xxBrittany]

Welcome Rebecca!
I hope you will find some comfort here on this website, knowing there are many other people going through similar things you are everyday.
Whenever you need anyone to talk too, I or anyone else is here for you.

Please know that you are not alone, and you seem like a really great girl and have a great personaility.

I am the administrator here at EDSkids and if you ever have any questions, problems or suggestions please do not hesitate to get ahold of me!

Take care!
-Brittany

[edsbec95]

thanks

[SophieeBabessxo]

Hiii

[ReineDeLaSeine14]

Hello! The Jonas Brothers are pretty awesome...I watch their show on Disney sometimes!

Ouch that injury must have HURT. I wear both knee braces and AFOs daily w/other braces. I have a walker and crutches and cant' really use a wheelchair anymore. I have Asperger's Syndrome so I'm on the autism spectrum too.

Please let me know if we can help with anything...hope to hear from you soon!

[xxBrittany]

Don't get me started on the Jonas Brothers...hahahaha.

[SophieeBabessxo]

JONAS JONAS JONAS
Sorry, I had to
Love them

[ReineDeLaSeine14]

lol!

[TinyBrooke]

In response to the JoBros: BLECH! EW! UGLY!
In response to Rebecca joining: Welcome! I'm pretty new here too and so far it's been great getting to know everyone. (I stalk on all the posts I'm not involved in, heehee!)

[edsbec95]

hi thanks i have asperges too , and autism , i do wear knee breaces and afo's all the time too . and i use a walker and wheelchair , i only use my wheelchair outside the house as i found out my selkton is a 75 year olds and my doctors said do physio and hydro but it makes me worse . so i am just trying to move more and i am hopeing to get ring splints soon .