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~Welcome New Members!~ Are you a new member? Drop on by and tell us a little bit about yourself!

Welcome To EDS-Kids
EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.

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Old 07-26-2009   #1
SophieeBabessxo
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tongue Heyy
Hii, I'm Sophie, I'm 14 and I'm from Suffok, England.
I'm diagnoised with HMS and EDS type 3.
I would like to get to know some new people with the same as me
Thanks For Spending Time In Reading This
Sophiee x
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Ehlers-Danlos Syndrome Hypermobility
Caffeine intolerance

Feel free to chat!
Last edited by SophieeBabessxo; 07-28-2009 at 01:29 PM.
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Old 07-29-2009   #2
xxBrittany
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Welcome Sophie. What level of EDS do you have.
Any questions you have about it, medication, or anything else you can think of just let me know and I will do my best to help you!

Welcome to EDSkids. You'll love it here.
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Old 07-30-2009   #3
SophieeBabessxo
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Well the HMS is 7 1/2 out of 10 (cause I don't have it in my thumbs)
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Ehlers-Danlos Syndrome Hypermobility
Caffeine intolerance

Feel free to chat!
Last edited by SophieeBabessxo; 08-05-2009 at 03:29 PM.
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Old 07-31-2009   #4
Chiara
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Hi Sophiee! nice to meet you
how do you feel?
Chiara
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Chiara, 18
EDS III type (or type I, they wonder about it)

Just Smile. ....and Always Stay Positive! Just think that life could be your worst enemy or your best love, it's up to you. And also the worst ailment could have its positive side.

I am a Hippie!!!
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Old 07-31-2009   #5
SophieeBabessxo
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Sore, very very sore :/
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Ehlers-Danlos Syndrome Hypermobility
Caffeine intolerance

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Last edited by SophieeBabessxo; 07-31-2009 at 01:44 PM.
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Old 08-11-2009   #6
Katherine
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Hey *waves*
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Old 08-11-2009   #7
SophieeBabessxo
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Heyyy
I recently got told i have Mogigraphia
If anyone knows about this, could you add a comment to the theard i made on Miscillanious (sorry for bad spelling) x
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Caffeine intolerance

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Old 09-25-2009   #8
ReineDeLaSeine14
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Welcome!
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Old 10-26-2009   #9
xxBrittany
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What is that exactly, Sophie?

I have never heard of it, and would like to research a little. How is it different from EDS?
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I am a site administrator and if you ever need anything please feel free to contact me.

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A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
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Old 10-27-2009   #10
SophieeBabessxo
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Well, its a posh word for writing cramps
I put another post asking about it and got some very useful information
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EDS Kids is a support group and community dedicated to helping young adults and children who suffer from chronic pain caused by illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS) is a debilitating genetic connective tissue disorder which causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
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