~Social Discussion~Have something to talk about that is not health related...this is the place to post! This is also the place to share good news and a place to vent after having a bad day!
Welcome To EDS-Kids
EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
I'm sorry I haven't been here for a long long long long long time but I have to tell you...last semester was my best one yet.
I've changed my major to library science (yes...it IS a science...) and I'm still doing French. I am learning more about computers and will get getting a Comp Sci minor (I taught myself how to use Linux).
I've gotten more into my dolls and into knitting....and i'm still looking at cake decorating with my mom and am supposed to be going to a convention in March.
I'm finally getting my electric wheelchair...it's going to be pink!
I had the opportunity to be in a study where it was discovered that I am missing an important developmental gene that has connective tissue as one of the things it affects. No one's sure if it's a new type of EDS or if it's a whole new disorder...I may have my geneticist complete the research; I may not (it was discovered by another doctor). It caused most of my medical problems.
And of course...my dogs are still ungodly adorable.
I hope everyone here is doing well...welcome to all the new members!
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What I always wish I was doing ---> :
I'm one of the mods here...feel free to PM me anytime (or IM too)