Hey

[Mcsuperawesome]

Hey guys, I'm Shannon Katherine. Most people call me Kat. I have chronic fatigue I have have EDS too.Type 3 so far, they just did a skin biopsy for other types. I do have chronic pain from it, and if I go anywhere worth going, I'm in my handy dandy wheelchair. I do have hip spikas to keep my hips in place if I really do want to walk around, although, they're big and bulky.
I also am doing a home bound program, because it's difficult to to stay in school with my conditions.
I am a dancer. or was, on my good days, I dance ballet like i used to.
I also used to be a runner, but had to stop.
I was just diagnosed in May. It started out just to see what was wrong with my hips so I could run cross country, turns out....no more running for me...haha
Um. I was big in sports, so this diagnoses was a big slap in the face. But it also explained sooooo many things.

anyways.
I'm Kat, glad to be a part of this.

[xxBrittany]

Hello Kat.
Wow, hearing what you just said about yourself truly reminded me of myself when I first got diagnosed in so many ways. I have EDS types 1 & 3 among other conditions and I used to be big into sports as well. I played Varsity basketball & lacrosse but had to stop because of my worsening conditions.
If you ever need anything, please come to me or gwen we are both the creators and administrators of EDSkids.

I just wanted to take a second and write you a quick welcome note and let you know I understand totally what you are going through and to tell you, you are not alone in any way at all.

Like, I said if you ever need anything please don't hesitate to ask.

Again, welcome to EDSkids, I am sure you'll find your spot rather quickly within our close-nit EDSkids family.

[Katherine]

Hey *waves*
Nice name my friends used to call me Kat, not many do anymore its more like Katherine, Mush, Kaz or Kas or shorty or, well the list continues!
Welcome aboard! I have EDS vascular or IV or whatever they call it! i got diagnosed when i was 16 but had been having tests since i was 13, the skin biopsy was to find out which type i have.

[Chiara]

hi! nice to meet you
my name's Chiara and I have EDS III type..i got diagnosed in march..
I'm glad you joined our community!
P.S. I'm italian so that i do not speak english very good, sorry bout that!
Chiara

[Chiara]

oh, and i used to dance ballet too, until my hip didn't start to hurt too much to stand it..

[xxBrittany]

Originally Posted by Chiara

oh, and i used to dance ballet too, until my hip didn't start to hurt too much to stand it..

I give you dancers all the credit in the world, because ballet especially en pointe looks SOOO hard and involves a lot of stability and endurance.

Put it this way, I'd be screwed from the beginning!

[ReineDeLaSeine14]

Hey I"m Stephanie...I have an odd type of EDS that hasn't been seen yet (i'm missing a gene) but I deal with a lot of dislocating and pain as part of it.

Do you think you can post pics of your hip spicas? I'm braced from mid thigh down but it's my hips and back and SI that are throwing everything else out.

Welcome! If you need anything don't hesitate to contact me.

[Chiara]

I'm interested in hip spikas too, could you post the photos please?

[xxBrittany]

What in the world are hip spikas?

[ReineDeLaSeine14]

hip braces!!!!