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~Welcome New Members!~ Are you a new member? Drop on by and tell us a little bit about yourself!

Welcome To EDS-Kids
EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.

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Old 04-26-2009   #1
DarkWaterfall
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Hello Hello
I'm new here at EDSKids even though I'm an adult technically... lol. I am diagnosed with EDS Hypermobility Type but have many crossovers into Classical and Vascular. I am going to be 27 this august even though I look about 14 most of the time. I just got my service dog Shadow recently and it's amazing the help he's given me.... as well as some sense of purpose. I don't work anymore, or drive, so I am usually stuck at home for a big portion of the day. Shadow gives me a structure and schedule, as well as some company. Soon I will have my powerchair. My mom's boyfriend is going to paint it pink for me and airbrush a penguin on it!!! I'm hoping it will give me more independence...

I also am working towards being an advocate for those with chronic or disabling conditions. I have started my own website and youtube channel.

I am really glad to have been invited here, and hope I can give as much as I can to the group.

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Old 04-26-2009   #2
ReineDeLaSeine14
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I'm really glad you came Kerri!

<3
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Old 04-27-2009   #3
mces0421
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Who say's your old? Remember that life begins at forty. Welcome here, I am also new here.
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Old 04-28-2009   #4
DarkWaterfall
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haha, I know I'm not old... I just feel old. Physically is kind of a give in, but also my 'baby' brother is turning 18 in a few months and really throwing me for a loop! lol. Thanks for the warm welcome!
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Old 04-30-2009   #5
ReineDeLaSeine14
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You have a brother?!?
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Old 05-01-2009   #6
DarkWaterfall
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i thought you knew that??? Yes, I have a brother and a sister. I also have two other brothers that are estranged, they are my father's boys. Both have kids, so that technically make me an auntie, but they have never bothered to contact me...
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Old 05-02-2009   #7
ReineDeLaSeine14
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Um I SO didn't know this!!!!

Wait did you mention to me once about other sibs of yours having EDS?
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Old 05-02-2009   #8
DarkWaterfall
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My brother was suspected of having Marfan's Syndrome as a child. He has a heart murmur, pectus excavatum, and low muscle tone as a baby. The geneticist ruled it out though.
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Old 05-04-2009   #9
ReineDeLaSeine14
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They might want to revisit that...
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Old 05-04-2009   #10
xxBrittany
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Hello! Glad you came to join us here on EDSkids. You are more than welcome here even though you do not fall under the kid category!
I'm an administrator and co-founder of EDSkids and my name is Brittany.
If you ever need ANYTHING please let Gwen (other administrator) or myself know so that we can assist you with whatever you need..

Thanks again for joining and can't wait to further talk to you on the boards!

PS- Shadow is a really cute name. I use to have a horse named Shadow.
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EDS Kids is a support group and community dedicated to helping young adults and children who suffer from chronic pain caused by illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS) is a debilitating genetic connective tissue disorder which causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
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