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~Welcome New Members!~ Are you a new member? Drop on by and tell us a little bit about yourself!

Welcome To EDS-Kids
EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.

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Old 12-15-2008   #1
Aimeewaimee
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Hello :D

Hi guys
I know I'm not entirely new, but this is the first chance I've had to come on here.
So I suppose I am new.

I'm Aimee.
I'm fifteen years old, and I live in England.
Although I prefer to call it Whaleland.

& Erm, I'm not really sure what else there is to say.

Ohyeah. I know that no one probably wants to hear my little rant.
But I have decided to come on here and vent my sadness/anger/annoyance.

Okay so I got some new ankle boots, which was an order from the hospital.
Only they're completely hideous.
Because my school is a uniformed school and boots are not in the dress code, everybody stares at me.
And whispers about me behind my back. Oh, and laugh at me.
A few people come up and ask why I'm wearing the boots, and I explain to them, but they just look at me like I'm a freak and walk off.
I wanted to be a sneak and wear the boots to school, but bring a change of shoes, but then I realised that isn't going to help my feet get better.
I'm just so annoyed and upset.
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Old 12-20-2008   #2
xxBrittany
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(:

Welcome Aimee!
Glad you decided to join us.


Eesh, your ankle boots sound horrible. I hope you figure something out.
Although people might look at you at school, you should wear them, because if you don't you're still going to be hurting in the long run either emotionally or physically. So in my suggestion, I'd wear the boots to help yourself and WHO CARES if people think you're weird. It's not your fault you have to wear them. Hey, think of it this way, it's a fashion statement that no one else is priveledged enough to wear!

Anyways, hope to see you around on the boards.
If you ever need anything, my name is Brittany ( Obviously) and Gwen ( SunsetParadise19) is around here too. We are the creators of this website and are the administrators and would love to help you if you have a problem, suggestion or whatever need be. Just know we are here!


Take Care!
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I am a site administrator and if you ever need anything please feel free to contact me.

"some of us are just trying to get through the day without falling apart."


A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
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Old 01-04-2009   #3
Chiara
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Hi nice to meet you!!!

My name's Chiara and I'm from Italy ^^
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EDS III type (or type I, they wonder about it)

Just Smile. ....and Always Stay Positive! Just think that life could be your worst enemy or your best love, it's up to you. And also the worst ailment could have its positive side.

I am a Hippie!!!
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Old 01-04-2009   #4
Mcsuperawesome
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Hey!
Nice to meet you.

I'm Shannon Katherine.

I feel so out of the loop when people say they're from England.
Well, I am too, but I haven't been there in three years. Dads job. Moves around. a lot.

but.
Ankle boots.
:/

I think it's similar with idk. any sort of brace. I wear so many braces on a typical day that my name in the world is now Robocop. I used to be in a wheelchair, so People often spoke behind my back, but I ignored them. I don't attend full school anymore, I'm home bound, but Try to somehow make themn funny. or decorate them. I decorated my hip spikas, and everyone loved them. The power of sharpies.

Good luck.
and nice to meet you!
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Old 01-05-2009   #5
Katherine
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Hey im Katherine and I'm from England too
i have EDS Vascular or whatever, so yer hi!
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Old 01-07-2009   #6
xxBrittany
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I love decorating my braces Shannon Katherine.
It's adds some spark to our daily lives.
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Stay Strong.


I am a site administrator and if you ever need anything please feel free to contact me.

"some of us are just trying to get through the day without falling apart."


A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
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EDS Kids is a support group and community dedicated to helping young adults and children who suffer from chronic pain caused by illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS) is a debilitating genetic connective tissue disorder which causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
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