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~Welcome New Members!~ Are you a new member? Drop on by and tell us a little bit about yourself!

Welcome To EDS-Kids
EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.

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Old 05-10-2008   #1
ZerstorenRot
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Hallo!
My name is Elaine but please call me Lain. I'm 15 years old and I go to an Arts Academy. I'm from the US (Blah!) but I also speak Japanese, French, German, ASL (American Sign Language), Norwegian, and a little Korean. Yes, as you can tell, I love languages!! I also like dancing ballet en pointe, singing, and reading.

Anyways! Onto the medical problems! Haha I'll just make a list.
-Photosensitivity
(I know, what a freak! lol XD I'm so weird)
-RSD
(Reflex Sympathetic Dystrophy, a mysterious thing indeed)
-Ehlers-Danlos Type III & IV
(I'm super flexible! I sued to contort actually...)
-Psychosis
(I'm also crazy...=P)
-Depression
(Pretty common in most people)
-Scoliosis
(about 1 degree from a back brace. PLEASE NO!!!!!)
-Kinemortophobia
(Hah I'm not even joking!)
-Anemia
(At least blood looks cool)
-Acne Rosacea
(FINALLY getting better)
-Panic Attacks
(Absolutely ridiculous)
-Minor Dyslexia
(DANG THOSE CAPTHA THINGS ON MYSPACE)
-Hemophilia


Hopefully we can be friends!
=D I'm really friendly so I love meeting new people!
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Old 05-11-2008   #2
stacekins
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Welcome!!
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Staci Jo
*21*

 When the world says "Give Up"; Hope whispers "Try one More TIme."

Classical EDS, Fibromyalgia, Depression, Anxiety, DDD & Bulging disk at L4-L5

I'm a moderator here and if you wanna chat or have any questions I'm here.
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Old 05-12-2008   #3
xxBrittany
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Hello Lain.
My name is Brittany and I am one of the co-owners here on EDSKIDS. If you ever need anything I am here for you!
I am really glad you decided to join us!

Also, everyone else here on the forum is pretty laid back and chill. The other co owner is Gwen ( Sunsetparadise17) I believe that's her sn. Haha.

Bad memory today.

Anyhow let me know if I can help with anything!
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Brittany Lynn
Stay Strong.


I am a site administrator and if you ever need anything please feel free to contact me.

"some of us are just trying to get through the day without falling apart."


A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
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Old 05-12-2008   #4
SunsetParadise19
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Hi I'm Gwen! The other girl who runs this joint!! If you ever need anything let us know!!

Welcome to EDSkids!
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Gwendolyn
*21 years old*

EDS (Hypermobility and Classical), POTS, NCS, CFS, IBS, GERD, Fibromyalgia, a sliding hiatal hernia, Depression, Gastroparisis
I am beginning to learn that it is the sweet, simple things of life which are the real ones after all.
~Laura Ingalls Wilder

 The best and most beautiful things in the world cannot be seen or even touched. They must be felt within the heart.
~Helen Keller
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Old 05-14-2008   #5
Katherine
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hey *waves*
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22
Vascular EDS
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Old 05-15-2008   #6
ReineDeLaSeine14
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Salut! Je m'appelle Stephanie et je parle le francais aussi. Ici je suis un "mod" donc si tu as besoin de n'importe quoi, n'hesite pas de m'envoyer un PM.

Moi j'ai EDS II et III...j'ai aussi de la photosensitivite a cause de Lupus...

BIENVENUE! (Je deteste fort les boites de captions sur des sites aussi...mais c'est a cause d'une deficience visuelle..."
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Old 05-16-2008   #7
Johnna
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Welcome! Sorry it took so long for me to respond ^^;;;

はじめまして。　私の名前はジャナです。　どうぞよろしく。　私も日本語が大好きですよ！　でも、私は日本 語二をべんきょうします。　私の日本語はちょっとわるいです、ごめんなさい。　
私は十八さいです。　ミシガンをすんでいます。　私は犬と猫と鳥とカメとモルモットをもっています。　どう ぶつはもっていますか。　猫をもっていますね？？？
私はEDS-IIIとFMSとCFSとClinical DepressionとHPA Axis DysfunctionとHypothyroidismとHypocortisolism/Adrenal Insufficiencyをもっています。　長い文ですね！　
EDS-Kidsをたのしんで下さい！！　

Wow... I REALLY hope I didn't ruin all that too badly... and that you understood most of what I was trying to say XD

-Johnna
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Johnna - 22- EDS III, FMS, CFS, Hashimoto's Thyroiditis, HPA Axis Dysfunction, POTS, Meniere's Disease, Clinical Depression. CURED of Adrenal Insufficiency! =]
I'm a ninja, zomg!
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Old 05-25-2008   #8
ReineDeLaSeine14
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lol my computer put it all as question marks
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Old 05-26-2008   #9
Johnna
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Quote:
Originally Posted by ReineDeLaSeine14 View Post
lol my computer put it all as question marks
It's Japanese!
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I'm an admin so please let me know if you need anything! =]

Johnna - 22- EDS III, FMS, CFS, Hashimoto's Thyroiditis, HPA Axis Dysfunction, POTS, Meniere's Disease, Clinical Depression. CURED of Adrenal Insufficiency! =]
I'm a ninja, zomg!
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Old 05-29-2008   #10
ReineDeLaSeine14
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yeah i know...this computer doesn't support Japanese characters...my laptop and desktop do but my parents' computer is crap...
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EDS Kids is a support group and community dedicated to helping young adults and children who suffer from chronic pain caused by illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS) is a debilitating genetic connective tissue disorder which causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
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