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~Doctors Appointments~ Feel free to share appointment updates in this section.

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EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.

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Old 12-21-2009   #1
Mcsuperawesome
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Going in for Pain Meds

In about an hour.


My joints have been KILLING me.

Walking.
kills me.
standing kills me faster.
sitting kills me.


everything kills me.


I pray to god they give me something. anything.
wish me luck <3
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Old 12-21-2009   #2
SophieeBabessxo
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Good luck and hope everything starts to get better for you xx
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Old 12-21-2009   #3
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F*** this!
Seriously.



ketoprofen?

REALLLY?


F*** YOU.


You want me to take this for a dislocated hip?
REally?
It feels like someone SHOT my hip.
and you want me to take something I used to take for menstrual pain?
F*** YOU.

Sorry. about the swearing.

I'm upset.
that my doctor thinks I'm a junkie.
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Old 12-30-2009   #4
SophieeBabessxo
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Awwh, i hope the doc. sorts him/herself out soon and gives you something that'll do the trick
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Old 01-12-2010   #5
xxBrittany
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Ugh, I hate when doctors think you are a junkie. I wish they could live through the pain for a week that we go through everyday. See how they feel after they go through their out of body experience.

Anywho, just be careful with the swearing thing next time. It offends some people around here and we have to keep it a G rated setting with younger kids around the boards and what nots! Thanks for understanding!
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Old 01-29-2010   #6
ReineDeLaSeine14
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Biiiiiig hug...it bothers me so much that doctors assume that young people will misuse the meds. People in chronic pain actually are no more likely to become addicted to their meds than everyone else.
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Old 06-18-2010   #7
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I hate being in chronic pain.
I wish they could just find a cure.

I haven't had a decent night's sleep in SO long, and I am starting to have horrible anxiety due to it, and depression.

My knees hurt so bad, and keep blowing out of socket..
I found out today that I have almost no feeling in my right leg, and it could be caused due to a pinched nerve in my back so I am having tests done to figure out what exactly it is, and how to correct it.

My pain meds that I am on now: Oxycontin and Oxycodone, is NOT working.
When I ask my doctor for me, he thinks I just want the high.
NO! I just want to be comfortable to the point I can sleep for just one night!

Is that seriously so much to ask for?!
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EDS Kids is a support group and community dedicated to helping young adults and children who suffer from chronic pain caused by illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS) is a debilitating genetic connective tissue disorder which causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
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