~Venting / Having a bad day?~Do you need to vent or are you just having a bad day? If so, this is the place to post!
Welcome To EDS-Kids
EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
I slipped on some ice and seriously injured my hips and elbow. That week I took a little extra pain meds because of the injury, so I ran out a week early. I called the pain clinic to let them know, and they informed me that Dr. Dimon was away on holiday so they couldn't get me my pain meds. The nurse suggested that I either go to the ER or to my family doctor.
SO I went to my family doctor, who prescribed me enough till the next time i saw Dimon.
When I went to go see Dimon, he was catatonic! He was so angry that I went to another doctor for pain meds; and then when I told him that I was only doing what the nurse told me to do, he replied with "there's NO way a nurse would EVER tell you that!" I said "Are you calling me a liar?" He replied with "No that's not what I'm saying." So I said "What ARE you saying?" He said "I'm saying someone's not telling the truth." (Uh... isn't that LYING?!)
Him and the entire pain clinic dropped me as a patient and because of what happened the other pain clinic that takes our insurance won't take me either. I am completely out of medication now. I am in severe pain, and very angry. UGH.
-Johnna
__________________ I'm an admin so please let me know if you need anything! =]
Johnna - 22- EDS III, FMS, CFS, Hashimoto's Thyroiditis, HPA Axis Dysfunction, POTS, Meniere's Disease, Clinical Depression. CURED of Adrenal Insufficiency! =] I'm a ninja, zomg!
My pain clinic has you report that you did this RIGHT AWAY even after you did it. I wonder if you'd done that if things would have changed. Like...report you got extra before you get the extra and after to verify...and the Dr. has to be involved too.
Think the nurse will 'fess up?
Can your family doctor help in any way...a psych if you have one????? Because this was just a mistake...but then again....
Maybe I can talk to my pain dr for ideas on what to do?
__________________
What I always wish I was doing ---> :
I'm one of the mods here...feel free to PM me anytime (or IM too)
Johnna,
that seems completely unfair to just drop you like that! do you know the nurses name that told you that? have your mom or dad called the pain clinic and talked to the manager of the office and explained what happened? maybe if you let them know that they will be hearing from your attorney will scare them and they will look into the matter LOL.
i'm so angry now LMAO!
__________________ Gwendolyn
*21 years old*
EDS (Hypermobility and Classical), POTS, NCS, CFS, IBS, GERD, Fibromyalgia, a sliding hiatal hernia, Depression, Gastroparisis
I am beginning to learn that it is the sweet, simple things of life which are the real ones after all.
~Laura Ingalls Wilder
The best and most beautiful things in the world cannot be seen or even touched. They must be felt within the heart.
~Helen Keller