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Reload this Page EDSkids on Facebook!

~Social Discussion~ Have something to talk about that is not health related...this is the place to post! This is also the place to share good news and a place to vent after having a bad day!

Welcome To EDS-Kids
EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.

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Old 03-02-2009   #1
SunsetParadise19
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(: EDSkids on Facebook!
I just created an EDSkids account on Facebook. Hopefully it will help people find us as well as help others with EDS!


If the following link doesn't bring you to the group, just search "EDSkids on Facebook" and you'll find the group.
http://www.facebook.com/profile.php?...1883838&ref=mf
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Gwendolyn
*21 years old*

EDS (Hypermobility and Classical), POTS, NCS, CFS, IBS, GERD, Fibromyalgia, a sliding hiatal hernia, Depression, Gastroparisis
I am beginning to learn that it is the sweet, simple things of life which are the real ones after all.
~Laura Ingalls Wilder

 The best and most beautiful things in the world cannot be seen or even touched. They must be felt within the heart.
~Helen Keller
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Old 03-04-2009   #2
ReineDeLaSeine14
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I joined!
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Old 03-08-2009   #3
Aimeewaimee
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Oh wow

I joined too.
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HYPERMOBILITY EDS.
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Old 04-22-2009   #4
xxBrittany
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Yay! I was thinking about making an EDSkids for Twitter.. would you guys want to join twitter or follow EDSkids on there too? So like, we all know how we are doing on a daily basis if we don't have time to run on here for the day or something. I know that Twitter is also mobile so you can update your status from your cellphones.
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"some of us are just trying to get through the day without falling apart."


A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
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Old 04-26-2009   #5
ReineDeLaSeine14
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I really hate Twitter...I'm Reine14 there...
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Old 05-04-2009   #6
xxBrittany
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Oh. Ok. That's cool. Does anyone have any other input on Twitter before I make my final decision?
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Brittany Lynn
Stay Strong.


I am a site administrator and if you ever need anything please feel free to contact me.

"some of us are just trying to get through the day without falling apart."


A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
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Old 07-27-2009   #7
SophieeBabessxo
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I don't think twitter is that popular, facebook, myspace and bebo are really popular
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Ehlers-Danlos Syndrome Hypermobility
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Old 07-29-2009   #8
xxBrittany
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Twitter is really popular around my area..
I think Myspace for EDSkids may be WAY overrated but what is your views on that?
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Brittany Lynn
Stay Strong.


I am a site administrator and if you ever need anything please feel free to contact me.

"some of us are just trying to get through the day without falling apart."


A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
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Old 07-30-2009   #9
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I might get twitter
and yeah it might be
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Ehlers-Danlos Syndrome Hypermobility
Caffeine intolerance

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Old 11-09-2009   #10
xxBrittany
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thanks for the input girl!
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Brittany Lynn
Stay Strong.


I am a site administrator and if you ever need anything please feel free to contact me.

"some of us are just trying to get through the day without falling apart."


A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
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EDS Kids is a support group and community dedicated to helping young adults and children who suffer from chronic pain caused by illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS) is a debilitating genetic connective tissue disorder which causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
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