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Reload this Page Dysautonomia / Orthostatic Intolerance to be on TV TONIGHT!!!

~Dysautonomia~ EDS has been linked to Dysautonomia. Here you can talk about your Dysautonomia and get advice from others regarding both EDS and Dysautonomia.

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Old 01-28-2008   #1
SunsetParadise19
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Dysautonomia / Orthostatic Intolerance to be on TV TONIGHT!!!
From NDRF site, this second segment is to feature Linda Smith. She says they mention dysautonomia and orthostatic intolerance. So do not be upset folks if they do not mention "POTS". All one needs to know is one as ANS dysfunction. And that word NEEDS to get out to doctors and the general public. Linda has no idea how it will be edited as she has not seen the tape.

I am posting info here that was posted about the program.

http://health.discovery.com/tv-sched...122489.29206.3

The following is quoted from their web site:

"Mystery Diagnosis
The Woman Who Kept Falling Down
TV-PG

Little Avry Conley of Texas has violent bouts of vomiting and diarrhea from the day he's born; doctors try to ease his symptoms, but they only get worse. Linda Smith experiences strange symptoms, including blackouts, after she hits puberty.

Jan 28, 10:00 pm
(60 minutes)
Jan 29, 1:00 am
(60 minutes)"
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Old 04-13-2008   #2
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I watched this and it was simply amazing!
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Old 04-16-2008   #3
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Yeah i thought it was pretty cool
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Old 06-25-2008   #4
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"some of us are just trying to get through the day without falling apart."


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EDS Kids is a support group and community dedicated to helping young adults and children who suffer from chronic pain caused by illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS) is a debilitating genetic connective tissue disorder which causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
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