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~Dysautonomia~ EDS has been linked to Dysautonomia. Here you can talk about your Dysautonomia and get advice from others regarding both EDS and Dysautonomia.

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EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.

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Old 01-11-2008   #1
SunsetParadise19
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Dysautonomia Information

What is Dysautonomia?

Dysautonomia (pronounced dis-auto-nome-eia) is a medical term that
covers many complex conditions caused by a malfunction in the Autonomic
Nervous System (ANS). The Autonomic Nervous System is very difficult to
understand because it controls all of the unconscious functions of our
body, such as our cardiovascular system, gastrointestinal system, and
urinary system. It also helps regulate our body temperature, metabolic
processes, and the endocrine system along with many other functions.
When the Autonomic Nervous System dysfunctions, this is known as
Dysautonomia.

Types of Dysautonomia~

Postural Orthostatic Tachycardia Syndrome (POTS), Neurocardiogenic
Syncope (NCS), Neurally Mediated Hypotension (NMH), Vasovagal Syncope,
Generalized Dysautonomia, Birth Dysautonomia, Non-Familial
Dysautonomia, Post-Viral Dysautonomia.

Symptoms of Dysautonomia may include~

Tachycardia, bradycardia, palpitations, chest pain, dangerously low
or high blood pressure, wide swings/sudden drops in blood pressure,
excessive fatigue, exercise intolerance, dizziness, fainting/near
fainting, gastrointestinal problems, nausea, insomnia, shortness of
breath, anxiety, tremulousness, frequent urination, seizures, cognitive
impairment, visual blurring/tunneling, and migraines.

Is there a cure for Dysautonomia?

As of today, there is no cure for Dysautonomia. Dysautonomia
patients can try different medications that will increase blood
pressure, beta blockers, and sometimes anti-depressants have helped
Dysautonomia patients function a little better. Another thing that
helps Dysautonomics is increasing their salt intake and greatly
increasing their fluid intake by drinking water and Gatorade. Something
else that can help is light exercise, such as strengthening their leg
muscles.

Websites:

www.dysautonomiadultsboards.com (This forum is for ages 18 and over)

www.DINET.org (Also known as POTSplace)

http://www.ndrf.org/

http://www.freewebs.com/whatisdysautonomia/index.htm
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Gwendolyn
*21 years old*


EDS (Hypermobility and Classical), POTS, NCS, CFS, IBS, GERD, Fibromyalgia, a sliding hiatal hernia, Depression, Gastroparisis


I am beginning to learn that it is the sweet, simple things of life which are the real ones after all.
~Laura Ingalls Wilder


The best and most beautiful things in the world cannot be seen or even touched. They must be felt within the heart.
~Helen Keller


Last edited by SunsetParadise19; 04-23-2008 at 08:32 PM.
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Old 01-17-2008   #2
Softballsweetie013
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Lemme just say.... Dysaut. is sooooooooo not fun!
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Old 01-17-2008   #3
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Easton!!!!

Yeah Dysaut. is no fun! I think we should become doctors Dana and find a cure. Think we could do it.

Oh, tonight my mom and I were watching Wheel of Fortune and I had major brain fog. The puzzle was something like doing a belly flop and I thought it was doink. I go, "it's doink something!" My mom burst out laughing and I couldn't stop either lol.
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Gwendolyn
*21 years old*


EDS (Hypermobility and Classical), POTS, NCS, CFS, IBS, GERD, Fibromyalgia, a sliding hiatal hernia, Depression, Gastroparisis


I am beginning to learn that it is the sweet, simple things of life which are the real ones after all.
~Laura Ingalls Wilder


The best and most beautiful things in the world cannot be seen or even touched. They must be felt within the heart.
~Helen Keller

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Old 01-24-2008   #4
ReineDeLaSeine14
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ah Brain Fog and the Ever Annoying Word Slips.

And no...Dysaut is NOT fun and I want to join in on the cure thing!!!!

I know my Dysaut causes me a LOT of problems...like erm it caused my narcolepsy and I can't go to the bathroom right anymore *blush* and I don't really sweat anymore either...and all that other fun stuff.

My docs want a cure too...but not as badly as I do!
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Old 01-25-2008   #5
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I think we should have a dysaut is no fun group.
I'll make the shrine. :P hahahaha.
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Old 01-27-2008   #6
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The Shrine to Gatorade...
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Old 04-13-2008   #7
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HAHAHHA.
Steph, you just totally made my day.
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Brittany Lynn
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I am a site administrator and if you ever need anything please feel free to contact me.

"some of us are just trying to get through the day without falling apart."

A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
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Old 04-23-2008   #8
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Updated links....
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Gwendolyn
*21 years old*


EDS (Hypermobility and Classical), POTS, NCS, CFS, IBS, GERD, Fibromyalgia, a sliding hiatal hernia, Depression, Gastroparisis


I am beginning to learn that it is the sweet, simple things of life which are the real ones after all.
~Laura Ingalls Wilder


The best and most beautiful things in the world cannot be seen or even touched. They must be felt within the heart.
~Helen Keller

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Old 06-25-2008   #9
xxBrittany
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Thanks Gwen!
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Brittany Lynn
Stay Strong.


I am a site administrator and if you ever need anything please feel free to contact me.

"some of us are just trying to get through the day without falling apart."

A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
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EDS Kids is a support group and community dedicated to helping young adults and children who suffer from chronic pain caused by illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS) is a debilitating genetic connective tissue disorder which causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
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