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~Social Discussion~ Have something to talk about that is not health related...this is the place to post! This is also the place to share good news and a place to vent after having a bad day!

Welcome To EDS-Kids
EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.

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Old 04-01-2010   #1
Katherine
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Hey

So I had an appt on Monday with one of my consultants and one thing she mentioned was getting me to start applying for DLA, she said it wouldnt be easy though...but I'm up for the fight!! Just wondered if any of you claim DLA? (Disability Living Allowance)
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Old 04-11-2010   #2
dev.x
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ive just applied for it and they sent be a letter to say that there looking at it but yep i would deffently suggest to apply for it..
you never know if you can get it if you dont try
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Old 04-12-2010   #3
Katherine
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ah cool, I still need to get the form and everything. let me know how you get on
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Old 04-12-2010   #4
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Personally, I don't have it. But my mum has a rare disease aswell, and she does get this as she cannot work.
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Old 04-16-2010   #5
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I've got a job that's bank hours - so basically as and when. Which is good when I'm having a rough patch because I won't need to worry about being at work. My consultant said I wont be able to work full time so I kinda need to get DLA or something like it to be able to do grown up things like have my own place to live etc
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Old 06-19-2010   #6
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I do not have DLA, because the stupid state of Maryland won't grant me social security benefits or anything. UGH.
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Old 06-24-2010   #7
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Ah that sucks Brittany! I'm really hoping that if I dont get DLA they'll suggest something else
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Old 06-25-2010   #8
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I have DLA which got turned down the first time but my Gp suggested I sent for a re consideration and i got it. so if you dont get it the first time i would definatley say it is worth asking for a re consideration
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Old 06-26-2010   #9
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My consultant basically told me I wont get it first time round but after filling out that 60 page form I won't give up easily!
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Old 06-30-2010   #10
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Maybe, I'll try again..and you guys will be my lucky charms!
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EDS Kids is a support group and community dedicated to helping young adults and children who suffer from chronic pain caused by illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS) is a debilitating genetic connective tissue disorder which causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
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