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~Hypermobility EDS~ For everyone with HEDS. Come here to talk about your daily lives, medications, doctor appointments etc. relating to this type of EDS.

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EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.

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Old 01-30-2010   #21
SophieeBabessxo
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I'm guessing your balance isn't as good as others, like mine. I'm also seriously clumsy :L I tend to walk into things a lot
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Old 01-31-2010   #22
ReineDeLaSeine14
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my pt told me that there are three things that contribute to balance: vision, joints, and the inner ear.

Well I have a severe vision impairment, EDS, and Dysaut. My chances are shot LOL
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Old 02-03-2010   #23
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awwwh
i get loads of infections with my inner ear
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Old 06-14-2010   #24
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I get alot of infections in my inner ear as well, and then usually get Vertigo from it...

YUCK!
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Old 10-10-2010   #25
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Brittany, if these ear infections make your ears ring constantly, combined with the vertigo, I would look into Meneire's disease. My older sister has it and there are a lot of environmental triggers that can cause it. For Jess, it's caffeine, high fructose corn syrup, and sodium. And she has a wheat allergy. So, pretty much she can't eat anything she likes. Meneire's gave her a ton of trouble a while back, before she was diagnosed with it, and now that she's eliminated the triggers, she's rarely ever bothered by it.
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Old 10-10-2010   #26
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Yeah I wake up every night to relocate my right shoulder *eyeroll*
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Old 10-20-2010   #27
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That's really interesting! Thanks for sharing that, and I will definitely ask my doctor about it the next time I see her!
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Old 11-06-2011   #28
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I seem to dislocate my wrist everyday- really painful because it traps nerves and makes my hand go numb and really cold and it also shakes really badly...
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Old 02-03-2012   #29
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Ouch. Have you been to an orthopedic doctor for that, Alice?
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Old 02-17-2012   #30
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Yup. My shoulders (especially the right one) are in a constant state of subluxation now. I had a really bad dislocation in my right shoulder just tonight because my bf accidentally grabbed my arm wrong. Its quite annoying. I also get them in my hips, sometimes my knees and elbows or fingers, and very rarely my right ankle.
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EDS Kids is a support group and community dedicated to helping young adults and children who suffer from chronic pain caused by illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS) is a debilitating genetic connective tissue disorder which causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
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