~Hypermobility EDS~For everyone with HEDS. Come here to talk about your daily lives, medications, doctor appointments etc. relating to this type of EDS.
Welcome To EDS-Kids
EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
Ugh, I know you guys must also have this problem. It's so annoying! I can dislocate almost every joint in my body which my doctor confirmed. I raise my arms; My shoulder falls out. I do a kick; my hip falls out. You get the idea.
I don't mind this most of the time because it doesn't hurt and I can just put it back in but I also do ballet. This makes regular ballet and ballet en pointe difficult. Why? How can I dance in my pointe shoes when my ankles dislocate? Or how do I make good arms positions when my shoulders or elbows pop out? It's extremely aggravating! I've always wanted to become a ballerina but because of this disease it won't be possible.
Plus people look at you weird when you're walking and all the sudden you fall because you're hip dislocated.
"Oh, sorry about that, just let me put my hip back in."
*CRACK*
"Ok, good to go"
No, that just looks weird! Does anyone have to deal with this either?
(((hugs))) You are not alone! I do not dislocate a lot, but I do at times. I know there are quite a few around here who dislocate a lot...hopefully they'll be around!
__________________ Gwendolyn
*21 years old*
EDS (Hypermobility and Classical), POTS, NCS, CFS, IBS, GERD, Fibromyalgia, a sliding hiatal hernia, Depression, Gastroparisis
I am beginning to learn that it is the sweet, simple things of life which are the real ones after all.
~Laura Ingalls Wilder
The best and most beautiful things in the world cannot be seen or even touched. They must be felt within the heart.
~Helen Keller
mainly my knee, pretty hard when youre walking through town and your mate turns round and says what are u doin? oh im just putting my knee back in! but it hurts when it happens to, and gives no warning also my hip and my elbow gets 'stuck' sometimes, like when im at the gym, i have to physically bend it using my other hand. not nice. so yerr youre not alone!
Mom: What the hell are you doing????
Me: Puttin' in my Hip Dance
Mom: Oh...
Or I just randomly collapse at Blockbuster...another day I took my thumb out holding a book and my sister (who also has EDS) goes "Eeeew I'm not putting that back!!!" She almost fell on her dog one day...
__________________
What I always wish I was doing ---> :
I'm one of the mods here...feel free to PM me anytime (or IM too)
Ugh, every bone in my body does this as well.
That's why I had to quit playing basketball because when I'd run like that and shoot and stuff my joints would come out of place causing me to fall or something. So I know EXACTLY what you're going through.
__________________ Brittany Lynn Stay Strong.
I am a site administrator and if you ever need anything please feel free to contact me.
"some of us are just trying to get through the day without falling apart."
A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
The most commonly dislocated joint is the shoulder.
Dislocations are uncommon in younger children because their growth plates (area of bone growth located in the ends of long bones) are weaker than the muscles or tendons; instead, children are more prone to a fracture than a dislocation.
Yeah Doctor Ken, True.. BUT people with EDS there are really NO common dislocating joints. They all have the same average and do whatever they want on the most part.
__________________ Brittany Lynn Stay Strong.
I am a site administrator and if you ever need anything please feel free to contact me.
"some of us are just trying to get through the day without falling apart."
A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
I dislocate, but mainly get sublaxtions. But i tend to dislocate in the oddest moments, like when I'm at a party, which gets very awkward, because everyone rushes over to see if your ok.
Bit awkward
I've found I dislocate constantly, it's never painless though. I rolled over in my sleep and dislocated my hip. I don't have any joints that dislocate more than the others but my hips and knees bother me the most.