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~Miscellaneous~ Have an EDS question (or any other health question!) but can't decide where to put it??? You can place it here!

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EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.

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Old 01-05-2011   #31
SophieeBabessxo
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In that case, I'm tiny!
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Ehlers-Danlos Syndrome Hypermobility
Caffeine intolerance

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Old 01-06-2011   #32
TinyBrooke
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I HATE it when people say, "hey, you're short!". I want to just be like "WHAT?!? No one ever told me! THANKS!"
And then punch them in the face. Or the gut. Whichever is closest.
Don't worry. I restrain myself. Most of the time
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EDS Hypermobility type
Raynaud's
Neurocardiogenic Syncope
Mitral Regurgitation
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Old 01-06-2011   #33
SophieeBabessxo
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Haha :L
I like being small Apart from when people think they can pick me up, and obviously they're not gentle so they hurt me
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Old 06-13-2011   #34
xxBrittany
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Sophie, I know what you mean about people thinking they are gentle but are not.. that happens to me alllll the time. I guess they look at EDS as being sort of a Elasti-Girl syndrome where everything pops out and what nots, but it doesn't hurt... But it does!
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Old 06-14-2011   #35
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My boyfriend used to find everything cool, thankfully he now realized it's not :L
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Ehlers-Danlos Syndrome Hypermobility
Caffeine intolerance

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Old 06-14-2011   #36
TinyBrooke
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I always tell people, "EDS is really cool in theory. Except in real life, it sucks."
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EDS Hypermobility type
Raynaud's
Neurocardiogenic Syncope
Mitral Regurgitation
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Old 06-15-2011   #37
SophieeBabessxo
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I like that saying!
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Old 08-15-2011   #38
xxBrittany
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Me too!
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I am a site administrator and if you ever need anything please feel free to contact me.

"some of us are just trying to get through the day without falling apart."


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EDS Kids is a support group and community dedicated to helping young adults and children who suffer from chronic pain caused by illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS) is a debilitating genetic connective tissue disorder which causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
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