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~Miscellaneous~ Have an EDS question (or any other health question!) but can't decide where to put it??? You can place it here!

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EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.

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Old 12-07-2010   #1
Johnna
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Buprenorphine
So the doctors put me on a new medication called Buprenorphine... also known as Suboxone. It... is... AMAZINGGGG. I'm VERY impressed. It brings my pain down from a 10 to a 4... without making me high! It turns out this drug is commonly used in EDS treatment, and also helps one come off of their other narcotics without the withdrawal symptoms. It's a sublingual, so it dissolves under the tongue and goes straight into the bloodstream... no more waiting 40 minutes for pain relief! The only complaint I have is that it tastes like I'm sucking on orange rinds... but if it keeps working like this, I can learn to love that taste.

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Old 12-27-2010   #2
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I am going to ask Dr. Francamono about this medicine and if I can take it, as I am close to allegic to EVERYTHING. *sighs*
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Old 01-05-2011   #3
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I have NEVER heard of it. I'm still on Opana and Percocet.
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Old 06-13-2011   #4
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I have officially weaned MYSELF off of ALL my narcotics except the ones that I need to take when I absolutely need them! I am so proud of myself, even though I withdrawled really bad. I also crash & burned when I came off the Lyrica.. and I believe that was almost worst getting off of then the narcotics.
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Old 09-01-2011   #5
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Suboxone is worst detox than narcotics.
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Old 09-21-2011   #6
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Really? I am going to talk to Doctor Francomono about it and see what she says..but if it's that hard to get off of, I don't know if it'll be worth it!
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EDS Kids is a support group and community dedicated to helping young adults and children who suffer from chronic pain caused by illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS) is a debilitating genetic connective tissue disorder which causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
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