~Miscellaneous~Have an EDS question (or any other health question!) but can't decide where to put it??? You can place it here!
Welcome To EDS-Kids
EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
this evening 22.30, at the ER:
Me: i came here because i dislocated my clavicle
orthopedic: well, you're clavicle and shoulder is perfect, maybe it could be muscular pain, did you do any strange sport? it could also be psychosomatic pain.
m.: no, i'm not lying, i tell you there's something wrong!
orth: we'll make the xrays anyway, so that you're happy
me:right
(after a hour: x rays)
nurse: come in, the medical report is here
doctor: well, you're clavicle is broken
me:WHAT???
doc:yes, it is broken. were you at school when you fell?
me:i did not fell!
doc:you did what?
me:i laughed.
doc:you what?
me:i laughed, i said.
doc:you broke your clavicle laughing????
me:i ask myself too
(orthopedics comes in)
ort:here we are, everything's ok, right?
doc:she broke her clavicle laughing.
ort: you kidding me???
doc: no way
they both looking at me with those wide eyes O.O
i don't know how the hell i broke it, guys.
the only thing i know is that it hurts quite a lot.
__________________
Chiara, 18
EDS III type (or type I, they wonder about it)
Just Smile. ....and Always Stay Positive! Just think that life could be your worst enemy or your best love, it's up to you. And also the worst ailment could have its positive side.
I think with EDS, anything can dislocate or break lol. It doesn't surprise me! I hope you feel better!! How does it heal? I know nothing about the clavicle.
__________________ Gwendolyn
*21 years old*
EDS (Hypermobility and Classical), POTS, NCS, CFS, IBS, GERD, Fibromyalgia, a sliding hiatal hernia, Depression, Gastroparisis
I am beginning to learn that it is the sweet, simple things of life which are the real ones after all.
~Laura Ingalls Wilder
The best and most beautiful things in the world cannot be seen or even touched. They must be felt within the heart.
~Helen Keller
Ouch. I broke my clavicle too. It's like the bone that is connected to your shoulders and neck. It's veryyyy painful and takes about 6-8 weekes to heal. They give you this little rinky dink brace that looks almost like a gun holster thing you see guys on shooting movies wear. It's weird.
But anyways. I hope you feel better Chiara!
__________________ Brittany Lynn Stay Strong.
I am a site administrator and if you ever need anything please feel free to contact me.
"some of us are just trying to get through the day without falling apart."
A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
Haha. I am clutsy as anything, and well.. playing volleyball in gym before I found out that I had EDS.. I went to dive for the ball and dislocated my right shoulder and broke my clavicle. It sucked so bad.
But yeah.. every now and then it hurts REALLY bad so I put my clavicle brace back on and it seems to do the trick!
__________________ Brittany Lynn Stay Strong.
I am a site administrator and if you ever need anything please feel free to contact me.
"some of us are just trying to get through the day without falling apart."
A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.