The blog of a EDS girl - EDSkids Forum

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The blog of a EDS girl

~Social Discussion~ Have something to talk about that is not health related...this is the place to post! This is also the place to share good news and a place to vent after having a bad day!

Welcome To EDS-Kids

EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.

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07-26-2008	#1
Chiara Devoted Member Join Date: Jun 2008 Location: italy Posts: 82	The blog of a EDS girl hi everybody! just come back from holiday and leaving again tomorrow morning! and what's best I'm leavin with my boyfriend! sorry bout that, i'm just very happy Anyway what i wanted to tell is that i've found a blog of a EDS girl, i liked it so i decided t share it with you ^^ http://girldislocated.blogspot.com/ hope you like it, if you haven't ever read it Chiara __________________ Chiara, 18 EDS III type (or type I, they wonder about it) Just Smile. ....and Always Stay Positive! Just think that life could be your worst enemy or your best love, it's up to you. And also the worst ailment could have its positive side. I am a Hippie!!!

07-29-2008	#2
SunsetParadise19 *Super Moderator Join Date: Jan 2008 Location: PA Posts: 364	Neat! Thanks for posting!! __________________ Gwendolyn 21 years old EDS (Hypermobility and Classical), POTS, NCS, CFS, IBS, GERD, Fibromyalgia, a sliding hiatal hernia, Depression, Gastroparisis I am beginning to learn that it is the sweet, simple things of life which are the real ones after all. ~Laura Ingalls Wilder The best and most beautiful things in the world cannot be seen or even touched. They must be felt within the heart. ~Helen Keller

08-05-2008	#3
xxBrittany *Amazing Administrator Join Date: Jan 2008 Country: Location: Maryland, USA. Posts: 913	Thanks for posting the blog! I really appreciate it and find it VERY interesting to read! __________________ Brittany Lynn Stay Strong. I am a site administrator and if you ever need anything please feel free to contact me. "some of us are just trying to get through the day without falling apart." A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.

08-07-2008	#4
Katherine Registered Users Join Date: Jan 2008 Country: Posts: 205	i had a good read, thanks! __________________ - Katherine 22 Vascular EDS

08-22-2008	#5
ReineDeLaSeine14 Moderator Join Date: Jan 2008 Country: Location: Connecticut Posts: 468	i love her work...she's so funny! __________________ What I always wish I was doing ---> : I'm one of the mods here...feel free to PM me anytime (or IM too)

09-01-2008	#6
xxBrittany *Amazing Administrator Join Date: Jan 2008 Country: Location: Maryland, USA. Posts: 913	She IS hilarious! Ha. I feel like FINALLY someone who doesn't know me at all, knows exactly what I am going through. __________________ Brittany Lynn Stay Strong. I am a site administrator and if you ever need anything please feel free to contact me. "some of us are just trying to get through the day without falling apart." A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.

09-16-2008	#7
ReineDeLaSeine14 Moderator Join Date: Jan 2008 Country: Location: Connecticut Posts: 468	mhmm i was inspired and made my own! __________________ What I always wish I was doing ---> : I'm one of the mods here...feel free to PM me anytime (or IM too)

10-20-2008	#8
xxBrittany *Amazing Administrator Join Date: Jan 2008 Country: Location: Maryland, USA. Posts: 913	Awh - same here Steph! What is your link? Is it open for public to read?! __________________ Brittany Lynn Stay Strong. I am a site administrator and if you ever need anything please feel free to contact me. "some of us are just trying to get through the day without falling apart." A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.

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07-27-2009

#9

SophieeBabessxo

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Join Date: Jul 2009

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Quote:

Originally Posted by ReineDeLaSeine14

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mhmm i was inspired and made my own!

samee, i never had a reason to write a blog, but now im really inspied (:

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Sophiee

Ehlers-Danlos Syndrome Hypermobility
Caffeine intolerance

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07-29-2009	#10
xxBrittany *Amazing Administrator Join Date: Jan 2008 Country: Location: Maryland, USA. Posts: 913	I try to write in my livejournal but I never have time. I barely have time to manage everything here on EDSkids. __________________ Brittany Lynn Stay Strong. I am a site administrator and if you ever need anything please feel free to contact me. "some of us are just trying to get through the day without falling apart." A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.

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© EDS Kids 2008
EDS Kids is a support group and community dedicated to helping young adults and children who suffer from chronic pain caused by illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS) is a debilitating genetic connective tissue disorder which causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
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