~Miscellaneous~Have an EDS question (or any other health question!) but can't decide where to put it??? You can place it here!
Welcome To EDS-Kids
EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
__________________ Gwendolyn
*21 years old*
EDS (Hypermobility and Classical), POTS, NCS, CFS, IBS, GERD, Fibromyalgia, a sliding hiatal hernia, Depression, Gastroparisis
I am beginning to learn that it is the sweet, simple things of life which are the real ones after all.
~Laura Ingalls Wilder
The best and most beautiful things in the world cannot be seen or even touched. They must be felt within the heart.
~Helen Keller
polyarthritis is arthritis in more than one joint...the full name for my disease is Polyarticular Juvenile Rheumatoid Arthritis...because when it developed it was in more than one joint and i was under 16 when i got it and it's RA.
Is it RA or OA?
__________________
What I always wish I was doing ---> :
I'm one of the mods here...feel free to PM me anytime (or IM too)
funny thing...my Rheumy didn't dx me with it...my PCP did. My Rheumy pretty much did NOTHING for me. He dx'd me with fibro and told me to have a nice life cause he wasn't going to do any treatment for me. I only saw him once. So I'll have to talk to my PCP about it.
__________________ Staci Jo *21*
When the world says "Give Up"; Hope whispers "Try one More TIme."
Classical EDS, Fibromyalgia, Depression, Anxiety, DDD & Bulging disk at L4-L5
I'm a moderator here and if you wanna chat or have any questions I'm here.