Any Relief

Johnna · 01-11-2008

Hey guys. My fibromyalgia and CFS have really been killing me this week. My lymph nodes are the size of golf balls... and I can barely make it across the room without running out of breath. To add onto it, I'm starting to dislocate my "good" shoulder (as if there's such a thing in EDS...)
Does anyone here know of ANY type of relief for those things, especially for the constantly swollen lymph nodes? I'm desperate. My lmphs have been swollen for 4 years now! Could I have some kind of tiny viral or bacterial infection sitting around in my body because I'm slightly immune deficient, causing my lymphs to be swollen?
Ugh... I'm running around in circles! Someone! Anyone! Any ideas...?

-Johnna

SunsetParadise19 · 01-11-2008

Oh Johnna! I'm so sorry to hear that you're feeling so poorly too....my CFS has been flaring for almost a month so I feel your pain.

Sadly I don't think there is anything you can do regarding the fibro. Just rest as much as you can I would say. Regarding the lymph nodes, I'm sure you've discussed them with a doctor, right? If you haven't, you know where to start lol!

(((hugs)))

stacekins · 01-11-2008

I would go to a your doctor about the lymph nodes, it sounds to me like you could have some kind of infection or something. For the fibro what i do is rest a lot and use a heating pad a lot so that I can get my muscles to relax and loosen up a bit.

I hope you feel better soon.

ReineDeLaSeine14 · 01-12-2008

Fibro + heat = aaaaah...

(I remember you being on a muscle relaxer...that helps a lot of people too)

As for the CFS...I have swollen lymphs from time to time...most of my docs aren't "into" CFS and Fibro so the thought is that I could have a chronic infection that just flares up...I'm supposed to see an Infectious Disease doc but I never went. Did your doc say the swelling is from the CFS???

Johnna · 01-12-2008

My doctor contributed the swelling to the Fibro... but has also told me I should see an infectious disease specialist. The only problem with this is that my dad just got let go of work yesterday, so we're still not quite sure if I still have that medical insurance. I guess we'll have to wait and see. ._.

-Johnna

xxBrittany · 01-15-2008

I hope you start to feel better Johnna. I would have written more but I am starting to get some major brain fog going on.

02-26-2009

I am so sorry to hear that all of you are so young and are suffering with this horrible disease. My aunt has been struggling with fibromyalgia for many years and swears by the healing benefits of epsom salt. She has been soaking for 20 minutes a day and buying the same box for years. However, we were in Walgreens a couple days ago and we found a new epsom salt product in the first aid aisle called Pepsom sports. She decided to try it and really liked the spearmint scent and they way she felt after soaking. Just thought I would pass along this information to anyone struggling with this disease. Hope you all feel better!

xxBrittany · 02-27-2009

Interesting! I should've checked into this!
Thanks for posting.

ReineDeLaSeine14 · 03-04-2009

Epsom salts are commonly used in injuries to reduce swelling...the mint helps with it too.

xxBrittany · 04-22-2009

Hmmm, I think after College today I am going to run to Wal*Mart and pick some up.

Thanks for the info guys!