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Reload this Page 5AwesomePOTSies - A youtube channel for those with Dysautonomia

~Dysautonomia~ EDS has been linked to Dysautonomia. Here you can talk about your Dysautonomia and get advice from others regarding both EDS and Dysautonomia.

Welcome To EDS-Kids
EDS Kids is a support group and community dedicated to helping children and young adult who suffer from chronic pain resulting from illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS for short) is a genetic connective tissue disorder which primarily causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.

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Old 12-21-2009   #1
SunsetParadise19
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heart 5AwesomePOTSies - A youtube channel for those with Dysautonomia
A group of 5 young women have created a youtube channel that we have decided to name, 5awesomePOTSies. We started with uploading our first video today! Each weekday, one girl will upload one new video on her specific day of the week. Sometimes behind the scenes we will come up with certain things that we want to discuss but other times we will just go with the flow. For the first week, we will just be introducing ourselves etc.

Here's the schedule:

Monday's: Paige
Tuesday's: Candice
Wednesday's: Leah
Thursday's: Kyli
Friday's: Shannon

http://www.youtube.com/user/5awesomepotsies

Please come watch us as we start our new channel and we hope that you "follow" us every day!

If you have any suggestions that you would like to see discussed or questions that we may be able to help you with, please feel free to ask here!

REMINDER: ALWAYS check with your doctor before TRYING anything that we may talk about in our videos....thank you!
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Gwendolyn
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EDS (Hypermobility and Classical), POTS, NCS, CFS, IBS, GERD, Fibromyalgia, a sliding hiatal hernia, Depression, Gastroparisis
I am beginning to learn that it is the sweet, simple things of life which are the real ones after all.
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 The best and most beautiful things in the world cannot be seen or even touched. They must be felt within the heart.
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Last edited by SunsetParadise19; 07-07-2010 at 02:03 AM.
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Old 12-21-2009   #2
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This is a really good idea! It will let people who don't have Dysautonomia (like me) understand more what it is about
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Old 01-12-2010   #3
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AWESOMENESS GWEN! I love the idea!
Wish we had something like this for EDS!
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Old 01-29-2010   #4
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We could do it!
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Old 06-18-2010   #5
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Steph, would you or anyone else want to do something like this?!

I'm TOTALLY up for it, if someone wants to do it with me?!
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Brittany Lynn
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I am a site administrator and if you ever need anything please feel free to contact me.

"some of us are just trying to get through the day without falling apart."

A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
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Old 07-07-2010   #6
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I want everyone to know that I am no longer participating in 5AwesomePotsies.
I have changed the information above to what is now currently correct.
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Gwendolyn
*21 years old*

EDS (Hypermobility and Classical), POTS, NCS, CFS, IBS, GERD, Fibromyalgia, a sliding hiatal hernia, Depression, Gastroparisis
I am beginning to learn that it is the sweet, simple things of life which are the real ones after all.
~Laura Ingalls Wilder

 The best and most beautiful things in the world cannot be seen or even touched. They must be felt within the heart.
~Helen Keller
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Old 6 Days Ago   #7
xxBrittany
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Thanks for the update, Gwen.
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I am a site administrator and if you ever need anything please feel free to contact me.

"some of us are just trying to get through the day without falling apart."

A good friend is a connection to life - A tie to the past, a road to the future, the key to sanity in a totally insane world.
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EDS Kids is a support group and community dedicated to helping young adults and children who suffer from chronic pain caused by illnesses and genetic conditions like Ehlers Danlos Syndrome and Fibromyalgia. Ehlers-Danlos Syndrome (EDS) is a debilitating genetic connective tissue disorder which causes chronic joint pain and joint dislocations. EDS Kids is a community dedicated to helping not only sufferers of EDS but their family and friends too.
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