treatment

[Chiara]

What is the treatment you follow for pain?
I'm using OH-triptofane but it is not working so much...
Is anybody of you taking vitamin C?

[ReineDeLaSeine14]

I take Percocet (roxicet + tylenol) Ultram (tramadol) Lyrica (pregabalin) and Cymbalta for pain...

i do relaxation therapy and supposed to be in aquatic therapy. I also have lidocaine patches.

[beth]

I take Tramacet and that's it, but judging by reinedelaseine's post though I could be taking more (unlike what the bloody lieing docs tell me :hmmm)

Which do you find works best out of Lyrica/Perc/Cymbalta/Tramadol etc?

maybe it's time for some med adjustment.....

[stacekins]

I'm not taking anything at the moment cause my meds quit working and my doctors didn't want to change them, so I took myself off of them.

[ReineDeLaSeine14]

The Perc works best overall but I need the Lyrica due to neuropathy.

[xxBrittany]

I am on a ton of pain medication.
I forget what all I am on, but I will look this evening and send what I know.

Otherwise, for pain & such, I just try to relax as much as possible and take it easy.

[xxBrittany]

Mike, I am not warning again, you have links in your profile that are not prohibited here. Please remove them.

[ReineDeLaSeine14]

It's good info though...but I see the links have still not been removed.

[Timeless]

they have now, removed them manually.

[xxBrittany]

Steph- We are not allowing any links in profiles because if we let him keep his links we have to let everyone have links.

Timeless- Thanks for removing them.

[ReineDeLaSeine14]

I just wanted the info in that post to be preserved which I see it has. Thanks

[xxBrittany]

Since I've seen Dr. Francamano, she put me on Lidoderm (Lidocaine) patches which = MIRACLE WORKERS. :)

And she has prescribed Percacet..

[ReineDeLaSeine14]

Wow I'm on both of those. Lidoderm is COLD when you put it on though...this tip is from my mom...sit on the patch and warm it with your butt before you put it on your skin :D

[xxBrittany]

Goooooooooooood idea! :)

[EDSK1d]

Has anyone tried "alternative methods" for joint pain? I am going to the doctors today, and they are planning on looking into other methods of treatment, like a tens unit, aquatic therapy, acupuncture, or things like that. They are also planning on putting me on Omega-3. Has anyone used these methods and found them helpful?

[Johnna]

I do a lot of water therapy and it's REALLY helped me. In fact, it's made me a TON stronger. I have also done a lot of massage therapy and that helped me more than anything, in the short term. I've used the TENS unit, but in all honesty it didn't help me much at all. Omega-3 made absolutely no difference in me.
In my non-professional opinion, the best thing one can do for themselves when they have EDS is to slowly strengthen their muscles so they can hold themselves together easier.

What I'm currently on for pain, medication wise, is Suboxone and Neurontin. =]

[TinyBrooke]

I've done a little massage therapy, and it helped some with pain, but made my SPD (sensory processing disorder) really confused (it freaks out my brain when people touch my back). I've done aquatic therapy once, and I'm looking to get back into it if there's a not-so-hot therapy pool in my town. TENS units also mess with my SPD. I'm currently weaning off of Lyrica and on to Gabapentin, I'll post later how it works for me. No reactions yet (knock on wood). I'm also on tramadol for breakthrough pain, which helps tremendously.

[xxBrittany]

I have a pool at my house, so I always try to do some aquatic therapy each week, but during the colder months I visit our local YMCA which has a heated pool, which I do laps and things that seem to help. I also take a lot of warm baths, not hot, because it seems to make me want to pass out if I do that due to my dysautonomia. Anyways, right now for pain, I am not on anything but muscle relaxers which seems to be slowly killing me because I do not think they are helping at all and Dr. Francomono seems to not want to help with pain at the current moment but I see her September 23rd so hopefully I can get her to change our plan a little. I do take a lot of supplements, and try to eat healthy and I find that helpful sometimes too. I notice if I eat something really sugary it makes my body feel ALL sorts of bogged out. So eating healthier, makes me feel healthier, literally.

Also, I have a TENS unit I am borrowing from my cousin, and it helps a little, but then I think it doesn't work at all, and I have had massage therapy and a couple more sessions that my Dad bought me for Christmas to use, and I HIGHLY recommend them!

As of Lidocaine patches, I think they work to some extent, and always use ice & heat, I find that helpful sometimes too!