prolotherapy

[Concerned]

Does anyone know about the use of prolotherapy as a first treatment for EDS? I read about it and wonder if anyone has been referred to such treatment or has received it? Does anyone know of a Dr. Hauser in Oak Park, IL who does the prolotherapy? Does anyone know of a clinic that specializes in treatment of symptoms of EDS-hypermobility type?

[TinyBrooke]

I wouldn't recommend prolotherapy as a treatment at all for EDS. It is very expensive and even in theory it wouldn't help with EDS. It stimulates the production of collagen, but if that collagen is faulty, too, it wouldn't do anything.
There are no clinics for EDS, but there are several doctors that subspecialize in EDS. Dr. Levy is one (I forget where he is, but some of our members have had not-so-great experiences with him. He's better for research.) Dr. Francomano at Johns Hopkins is awesome. Everyone loves her. Dr. Tinkle is at Cincinnati Children's Hospital, and he is very active in the EDS community and is even a part of a few EDS support groups on Facebook.
Hope that helps!

[EDSK1d]

My mom wanted me to get prolotherapy. But she has wanted me to get almost every alternative remedy. But that's nice to know that I shouldn't do it.

[xxBrittany]

I haven't heard much about prolotherapy, but I have seen Dr. Levy as a doctor, and I personally had horrible experiences with him. I then switched to Dr. Francomono who I go to now who taught, surprisingly, Dr. Levy and I LOVE her. They are both located in Baltimore, MD!